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Notches on the dial: a call to action to develop plain language communication with the public about users and uses of health data.

作者信息

Paprica P A, McGrail K M, Schull M J

机构信息

Institute of Health Policy, Management and Evaluation, University of Toronto, Health Sciences Building, 155 College Street, Suite 425, Toronto, ON M5T 3M6.

University of British Columbia, UBC Centre for Health Services and Policy Research Vancouver Campus 201-2206 East Mall Vancouver, BC Canada V6T 1Z3.

出版信息

Int J Popul Data Sci. 2019 Aug 5;4(1):1106. doi: 10.23889/ijpds.v4i1.1106.

Abstract
摘要

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本文引用的文献

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The impact of the EU general data protection regulation on scientific research.
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Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme.
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The social licence for research: why care.data ran into trouble.
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Towards Principles-Based Approaches to Governance of Health-related Research using Personal Data.
Eur J Risk Regul. 2013 Jan 1;4(1):43-57. doi: 10.1017/s1867299x00002786.

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