青年观点：对耐药性癫痫的先进神经技术的看法。
Youth Weigh In: Views on Advanced Neurotechnology for Drug-Resistant Epilepsy.
机构信息
Neuroethics Canada, Division of Neurology, Department of Medicine, 8166University of British Columbia, Vancouver, British Columbia, Canada.
Faculty of Medicine, 8166University of British Columbia, Vancouver, British Columbia, Canada.
出版信息
J Child Neurol. 2021 Feb;36(2):128-132. doi: 10.1177/0883073820957810. Epub 2020 Sep 17.
BACKGROUND
Epilepsy affects over 500,000 children in North America of whom 30% have drug-resistant epilepsy. Advancements with neurotechnologies show promising benefits, but the perceptions of these procedures by youth is unknown.
METHODS
We conducted semistructured interviews with 10 youth in British Columbia, Canada who underwent procedures for drug-resistant epilepsy involving different forms of neurotechnology (subdural grids, vagus nerve stimulation, responsive neurostimulation). Interviews were analyzed using the constant comparative qualitative method.
RESULTS
Four major thematic categories emerged from the interviews. Treatment values, impact of the disorder, personal context, and impact of neurotechnology.
CONCLUSIONS
Besides the predictable goal of seizure reduction, a desire for autonomy and the importance of trust in the medical team emerged as dominant values within the 4 thematic categories that were explicit to the use of new neurotechnologies for the management of drug-resistant epilepsy.
背景
北美洲有超过 50 万名儿童患有癫痫，其中 30%的患者患有耐药性癫痫。神经技术的进步显示出了有前景的益处，但年轻人对这些程序的看法尚不清楚。
方法
我们对不列颠哥伦比亚省的 10 名接受耐药性癫痫治疗的青少年进行了半结构化访谈，这些治疗涉及不同形式的神经技术（硬膜下网格、迷走神经刺激、反应性神经刺激）。使用恒定比较定性方法分析访谈。
结果
访谈中出现了四个主要的主题类别。治疗价值观、疾病的影响、个人背景和神经技术的影响。
结论
除了可预测的减少癫痫发作的目标外，在这四个主题类别中，自主性的愿望和对医疗团队的信任这两个主导价值观也凸显出来，这对耐药性癫痫的新神经技术的使用具有重要意义。
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