Laal Mousavi Seyed Mohsen, Mohammadzadeh Niloofar, Ayyoubzadeh Seyed Mohammad, Mohajerzadeh Leily, Alidadi Maryam
Department of Health Information Management, School of Allied Medical Sciences Tehran University of Medical Sciences Tehran Iran.
Research Institute for Children's Health Shahid Beheshti University of Medical Science Tehran Iran.
Health Sci Rep. 2024 Mar 11;7(3):e1942. doi: 10.1002/hsr2.1942. eCollection 2024 Mar.
Hypospadias, a congenital anomaly, can have long-term effects on sexual, urinary, and reproductive functions, making proper postoperative care essential for desirable outcomes, which could be facilitated through a mobile application for diseases with long-term complications. The aim of this study was to investigate the data and functional requirements or minimum data set of a postoperative education mobile application for caregivers of children with hypospadias.
A literature review of papers published until April 2023 using Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) statement was conducted to determine the data and functional requirements of a mobile application that provides postoperative education to caregivers of children with congenital hypospadias. Based on the results, a questionnaire was prepared, and its content validity and reliability were evaluated by CVI and CVR. Additionally, data was examined by 30 residents, specialists, and subspecialists in pediatric surgery using the Delphi approach.
The study identified 28 data elements in three main categories: demographic data, clinical data, and application function. Functional requirements of the mobile application were suggested for use in designing the application. Also, the most critical data elements included the definition of disease, the importance of treatment, surgical preparation, bandage, hygiene, symptoms and infection, bleeding, and emergency condition.
The study will pave the way for developing postoperative educational applications for caregivers of children with congenital hypospadias. M-Health app developers and clinician specialists can utilize these findings to design practical applications that assist caregivers in managing the care of hypospadias patients.
尿道下裂是一种先天性畸形，可对性功能、泌尿功能和生殖功能产生长期影响，因此术后的妥善护理对于取得理想效果至关重要，而一款针对有长期并发症疾病的移动应用程序有助于实现这一点。本研究的目的是调查尿道下裂患儿护理人员术后教育移动应用程序的数据和功能需求或最小数据集。
采用系统评价和Meta分析的首选报告项目（PRISMA）声明，对截至2023年4月发表的论文进行文献综述，以确定为先天性尿道下裂患儿护理人员提供术后教育的移动应用程序的数据和功能需求。基于研究结果编制了一份问卷，并通过内容效度指数（CVI）和内容效度比率（CVR）对其内容效度和信度进行评估。此外，采用德尔菲法让30名小儿外科住院医师、专科医师和亚专科医师对数据进行审查。
该研究在三个主要类别中确定了28个数据元素：人口统计学数据、临床数据和应用功能。提出了移动应用程序的功能需求，以供设计应用程序时使用。此外，最关键的数据元素包括疾病定义、治疗的重要性、手术准备、包扎、卫生、症状与感染、出血和紧急情况。
该研究将为开发先天性尿道下裂患儿护理人员术后教育应用程序铺平道路。移动健康应用程序开发者和临床专科医师可利用这些研究结果设计实用的应用程序，以协助护理人员管理尿道下裂患者的护理。
