School of Nursing, Zhejiang Chinese Medical University, Hangzhou, China.
Department of Nursing, Zhejiang University of Traditional Chinese Medicine First Affiliated Hospital, Hangzhou, China.
Int J Nurs Pract. 2021 Aug;27(4):e12892. doi: 10.1111/ijn.12892. Epub 2020 Sep 23.
This study aimed to explore the experiences of family caregivers interacting with people with dementia.
A majority of people with mild-to-moderate dementia live at home with family caregivers. This interaction creates positive experiences and challenges for these caregivers.
Descriptive phenomenological qualitative inquiry guided this study.
This qualitative study involved semi-structured interviews with the caregivers of people with mild-to-moderate dementia (n = 10). Data were collected from June to September 2018, and then data were thematically analysed.
Six categories of themes were identified from the interviews: (1) unexpected things often happen; (2) positive coping strategies; (3) sense of accomplishment because people with dementia actively participate in activities; (4) sense of frustration because of the reluctance of people with dementia to participate in activities; (5) hope for the happiness of people with dementia; and (6) want to have their own life.
This study reveals that caregivers could positively interact with people with dementia through creating opportunities and arranging meaningful activities. Future research should focus on family management and training on how to help caregivers interact effectively with people with dementia.
本研究旨在探讨家庭照顾者与痴呆症患者互动的体验。
大多数轻度至中度痴呆症患者与家庭照顾者一起在家中生活。这种互动为这些照顾者带来了积极的体验和挑战。
本研究采用描述性现象学定性研究方法。
本质性研究包括对 10 名轻度至中度痴呆症患者的照顾者进行半结构式访谈。数据收集于 2018 年 6 月至 9 月，然后对数据进行主题分析。
访谈中确定了六个主题类别：（1）经常会发生意想不到的事情；（2）积极的应对策略；（3）由于痴呆症患者积极参与活动而感到有成就感；（4）由于痴呆症患者不愿意参与活动而感到沮丧；（5）希望痴呆症患者幸福；以及（6）希望有自己的生活。
本研究表明，照顾者可以通过创造机会和安排有意义的活动，与痴呆症患者进行积极互动。未来的研究应侧重于家庭管理以及如何帮助照顾者与痴呆症患者有效互动的培训。
