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长期护理机构中痴呆患者的中国家庭照顾者的压力源和应对策略:一项定性描述性研究。

Stressors and coping strategies in Chinese family caregivers of people with dementia in long-term care facilities: A qualitative descriptive study.

机构信息

School of Public Health, Health Science Centre, 26451Xi'an Jiaotong University, Xi'an, Shaanxi, China.

The Nethersole School of Nursing, Faculty of Medicine, 26451The Chinese University of Hong Kong, Hong Kong, China.

出版信息

Dementia (London). 2022 Apr;21(3):957-971. doi: 10.1177/14713012211066661. Epub 2022 Feb 8.

Abstract

OBJECTIVES

This study aimed to explore the stressors along with coping strategies in Chinese family caregivers whose relative with dementia had been placed into a long-term care facility.

METHODS

A qualitative descriptive study was conducted with 17 Chinese family caregivers of institutionalised older adults with dementia, recruited via purposeful sampling. Information regarding stressors along with coping strategies was collected through face-to-face semi-structured individual interviews. The interviews were audio-recorded, transcribed, anonymised and imported into MAXQDA 2018.2. Data were analysed with qualitative content analysis.

FINDINGS

Three categories of stressors emerged: socioeconomic pressure, hassles arising from continuing caregiving and suboptimal care provided by the facility. In particular, the family caregivers' experienced tremendous pressure of negative comments from people around since long-term care placement was traditionally viewed as unfilial in Chinese societies. Various coping strategies were adopted by Chinese family caregivers to deal with the stressors; however, they were not always adaptive.

IMPLICATIONS

Health care authorities and professionals should recognise family caregivers' stressors after long-term care placement of a relative with dementia with the consideration of the unique socio-cultural needs. Appropriate and effective interventions should be developed and implemented to facilitate family caregivers to cope with stressful situations after long-term care placement and further to safeguard their psychosocial well-being.

摘要

目的

本研究旨在探讨将患有痴呆症的亲属安置在长期护理机构后,中国家庭照顾者的压力源及应对策略。

方法

采用目的抽样法,选取 17 名将患有痴呆症的老年患者安置在长期护理机构的中国家庭照顾者,对其进行定性描述性研究。通过面对面的半结构式个人访谈,收集有关压力源及应对策略的信息。访谈进行录音、转写、匿名处理并输入 MAXQDA 2018.2。采用定性内容分析法对数据进行分析。

结果

出现了三类压力源:社会经济压力、继续护理带来的困扰以及机构提供的护理不尽如人意。特别是,由于长期护理在传统上被视为不孝,中国社会中家庭成员在亲属被安置在长期护理机构后会承受来自周围人的负面评价的巨大压力。中国家庭照顾者采用了各种应对策略来应对压力源,但这些策略并不总是适应性的。

结论

医疗保健当局和专业人员应认识到家庭照顾者在亲属患有痴呆症后长期护理安置所面临的压力,同时考虑到独特的社会文化需求。应制定和实施适当和有效的干预措施,以帮助家庭照顾者在长期护理安置后应对紧张局势,进一步保障他们的心理健康。

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