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通过研究推进遗传咨询专业发展:全国遗传咨询师协会研究工作组确定优先事项。

Advancing the genetic counseling profession through research: Identification of priorities by the National Society of Genetic Counselors research task force.

机构信息

Division of Human Genetics, Department of Internal Medicine, The Ohio State University Comprehensive Cancer Center, Columbus, Ohio, USA.

Departments of Psychiatry and Genetics, University of British Columbia, Vancouver, British Columbia, Canada.

出版信息

J Genet Couns. 2020 Dec;29(6):884-887. doi: 10.1002/jgc4.1330. Epub 2020 Sep 23.

Abstract

To help advance research critical to the achievement of the National Society of Genetic Counselors' (NSGC) strategic objectives, coordination and prioritization of society resources are needed. NSGC convened a task force to advance research necessary for the achievement of our strategic objectives by reviewing existing society-supported research efforts identifying gaps in current research, and coordinating society resources, the task force was formed in order to coordinate and prioritize society resources to advance research critical to the achievement of our strategic objectives. The task force developed a research agenda outlining high-priority research questions for the next 5 years. The questions are organized into four domains: (a) Genetic Counseling Clients; (b) Genetic Counseling Process and Outcomes; (c) Value of Genetic Counseling Services; and (d) Access to Genetic Counseling Services. This framework can be used to advocate for research and funding priorities within NSGC and with other key research entities to stimulate the growth and advancement of the genetic counseling profession.

摘要

为了帮助推进对实现国家遗传咨询师协会(NSGC)战略目标至关重要的研究,需要协调和优先考虑协会的资源。NSGC 召集了一个工作组,通过审查现有的协会支持的研究工作,确定当前研究中的差距,并协调协会资源,以推进实现我们的战略目标所需的研究。该工作组的成立是为了协调和优先考虑协会资源,以推进对实现我们的战略目标至关重要的研究。该工作组制定了一个研究议程,概述了未来 5 年的高优先级研究问题。这些问题分为四个领域:(a)遗传咨询客户;(b)遗传咨询过程和结果;(c)遗传咨询服务的价值;和(d)获得遗传咨询服务的机会。这个框架可以用于在 NSGC 内部以及与其他关键研究实体一起倡导研究和资金重点,以激发遗传咨询专业的发展和进步。

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