Department of Psychology, Loyola University Chicago, Chicago, IL, USA.
Children's Hospital Los Angeles, Los Angeles, CA, USA.
J Pediatr Rehabil Med. 2020;13(4):525-534. doi: 10.3233/PRM-200719.
Spina bifida's (SB) impact on cognitive, physical, and psychosocial functioning places individuals at risk for mental health concerns. This article discusses the SB Mental Health Guidelines from the 2018 Spina Bifida Association's Fourth Edition of the Guidelines for the Care of People with Spina Bifida and reviews evidence-based directions with the intention of helping individuals with SB achieve optimal mental health throughout the lifespan. Guidelines address clinical questions pertaining to the psychosocial impact of SB on mental health and adaptation, domains of mental health that are affected in individuals with SB, areas of resilience, common maladaptive behaviors that may impact people with SB, and resources or practices that are helpful in mitigating mental health issues in this population. Gaps in the research and future directions are discussed.
脊柱裂(SB)对认知、身体和社会心理功能的影响使个体面临心理健康问题的风险。本文讨论了 2018 年脊柱裂协会第四版《脊柱裂患者护理指南》中的 SB 心理健康指南,并审查了循证指导方向,旨在帮助 SB 患者在整个生命周期内实现最佳心理健康。指南涉及与 SB 对心理健康和适应的社会心理影响、SB 患者受影响的心理健康领域、韧性领域、可能影响 SB 患者的常见适应不良行为以及有助于减轻该人群心理健康问题的资源或实践相关的临床问题。讨论了研究中的差距和未来方向。