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本文引用的文献

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Prenatal Repair of Myelomeningocele and School-age Functional Outcomes.脊髓脊膜膨出的产前修复与学龄期的功能结局
Pediatrics. 2020 Feb;145(2). doi: 10.1542/peds.2019-1544.
2
Clinical Practice Guideline for the Diagnosis, Evaluation, and Treatment of Attention-Deficit/Hyperactivity Disorder in Children and Adolescents.儿童和青少年注意缺陷多动障碍的诊断、评估和治疗临床实践指南。
Pediatrics. 2019 Oct;144(4). doi: 10.1542/peds.2019-2528.
3
Scientific methodology of the development of the Guidelines for the Care of People with Spina Bifida: An initiative of the Spina Bifida Association.《脊髓脊膜膨出人士照护指南制定的科学方法学:脊髓脊膜膨出协会的一项倡议》。
Disabil Health J. 2020 Apr;13(2):100816. doi: 10.1016/j.dhjo.2019.06.005. Epub 2019 Jun 18.
4
Finding the genetic mechanisms of folate deficiency and neural tube defects-Leaving no stone unturned.探寻叶酸缺乏与神经管缺陷的遗传机制——不放过任何蛛丝马迹。
Am J Med Genet A. 2017 Nov;173(11):3042-3057. doi: 10.1002/ajmg.a.38478. Epub 2017 Sep 25.
5
Social Skills in Youth With Spina Bifida: A Longitudinal Multimethod Investigation Comparing Biopsychosocial Predictors.青年脊柱裂患者的社交技能:比较生物心理社会预测因素的纵向多方法研究。
J Pediatr Psychol. 2017 Nov 1;42(10):1133-1143. doi: 10.1093/jpepsy/jsx069.
6
The effectiveness of bowel and bladder interventions in children with spina bifida.肠道和膀胱干预对脊柱裂患儿的有效性。
Dev Med Child Neurol. 2016 Sep;58(9):979-88. doi: 10.1111/dmcn.13095. Epub 2016 Mar 15.
7
Plasticity of Interhemispheric Temporal Lobe White Matter Pathways Due to Early Disruption of Corpus Callosum Development in Spina Bifida.脊柱裂患者胼胝体发育早期中断导致的半球间颞叶白质通路可塑性
Brain Connect. 2016 Apr;6(3):238-48. doi: 10.1089/brain.2015.0387. Epub 2016 Jan 22.
8
Attention in spina bifida myelomeningocele: Relations with brain volume and integrity.脊柱裂脊髓脊膜膨出中的注意力:与脑容量和完整性的关系。
Neuroimage Clin. 2015 Mar 31;8:72-8. doi: 10.1016/j.nicl.2015.03.022. eCollection 2015.
9
A qualitative exploration of the experiences of children with spina bifida and their parents around incontinence and social participation.对脊柱裂患儿及其父母在大小便失禁和社会参与方面经历的质性探索。
Child Care Health Dev. 2015 Nov;41(6):954-62. doi: 10.1111/cch.12257. Epub 2015 May 23.
10
Prospective and episodic memory in relation to hippocampal volume in adults with spina bifida myelomeningocele.脊柱裂脊髓脊膜膨出成人的前瞻性和情景记忆与海马体积的关系
Neuropsychology. 2015 Jan;29(1):92-101. doi: 10.1037/neu0000111. Epub 2014 Jul 28.

脊髓裂患者神经心理学护理指南。

Neuropsychological care guidelines for people with spina bifida.

机构信息

Department of Psychiatry, Children's Hospital Boston, Boston, MA, USA.

Harvard Medical School, Boston, MA, USA.

出版信息

J Pediatr Rehabil Med. 2020;13(4):663-673. doi: 10.3233/PRM-200761.

DOI:10.3233/PRM-200761
PMID:33285647
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7838972/
Abstract

While the neuropsychological profile for individuals with Spina Bifida (SB) can vary, often certain patterns of strengths and weaknesses are evident across the lifespan. Understanding variability related to neural structure, genetics, ethnicity, and the environment is key to understanding individual differences in outcomes and can be vital in planning interventions and tracking progress. This article outlines the SB Guideline for the Neuropsychological Care of People with Spina Bifida from the 2018 Spina Bifida Association's Fourth Edition of the Guidelines for the Care of People with Spina Bifida and acknowledges that further research in SB neurocognitive profiles is warranted.

摘要

虽然脊髓脊膜膨出(SB)患者的神经心理学特征可能存在差异,但在整个生命周期中,通常会出现某些优势和劣势模式。了解与神经结构、遗传、种族和环境相关的可变性是理解结果个体差异的关键,对于干预计划和进展跟踪至关重要。本文概述了 2018 年脊髓脊膜膨出协会第四版《脊髓脊膜膨出患者护理指南》中的脊髓脊膜膨出神经心理学护理指南,并认识到 SB 神经认知特征的进一步研究是必要的。