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Short stature and the effect of human growth hormone: Guidelines for the care of people with spina bifida.身材矮小与人生长激素的作用：脊髓脊膜膨出患者护理指南。
J Pediatr Rehabil Med. 2020;13(4):549-555. doi: 10.3233/PRM-200710.
2
Neuropsychological care guidelines for people with spina bifida.脊髓裂患者神经心理学护理指南。
J Pediatr Rehabil Med. 2020;13(4):663-673. doi: 10.3233/PRM-200761.
3
Latex allergy guidelines for people with spina bifida.脊髓裂患者乳胶过敏指南。
J Pediatr Rehabil Med. 2020;13(4):601-609. doi: 10.3233/PRM-200741.
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Mobility guidelines for the care of people with spina bifida.脊髓裂人士护理活动指引。
J Pediatr Rehabil Med. 2020;13(4):621-627. doi: 10.3233/PRM-200744.
5
Central precocious puberty in spina bifida children: Guidelines for the care of people with spina bifida.脊髓脊膜膨出患儿的中枢性性早熟：脊髓脊膜膨出人士照护指南。
J Pediatr Rehabil Med. 2020;13(4):557-563. doi: 10.3233/PRM-200728.
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Nutrition, metabolic syndrome, and obesity: Guidelines for the care of people with spina bifida.营养、代谢综合征和肥胖：脊髓裂患者护理指南。
J Pediatr Rehabil Med. 2020;13(4):637-653. doi: 10.3233/PRM-200753.
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Mental health guidelines for the care of people with spina bifida.脊髓裂患者护理的精神卫生指南。
J Pediatr Rehabil Med. 2020;13(4):525-534. doi: 10.3233/PRM-200719.
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Family functioning guidelines for the care of people with spina bifida.脊髓裂患者护理的家庭功能指南。
J Pediatr Rehabil Med. 2020;13(4):535-542. doi: 10.3233/PRM-200720.
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Quality of life: Guidelines for the care of people with spina bifida.生活质量：脊髓裂患者护理指南。
J Pediatr Rehabil Med. 2020;13(4):565-582. doi: 10.3233/PRM-200732.
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Sexual health and education guidelines for the care of people with spina bifida.脊髓裂患者关怀的性健康和教育指南。
J Pediatr Rehabil Med. 2020;13(4):611-619. doi: 10.3233/PRM-200743.
引用本文的文献
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Application of Bioelectrical Impedance Analysis in Weight Management of Children with Spina Bifida.生物电阻抗分析在脊灰患儿体重管理中的应用。
Nutrients. 2024 Sep 23;16(18):3222. doi: 10.3390/nu16183222.
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Evaluation of Urinary L-FABP as a Tubular Damage Marker in Pediatric Neurogenic Bladder-A Pilot Study.尿L-FABP作为小儿神经源性膀胱肾小管损伤标志物的评估——一项初步研究
J Clin Med. 2024 Jan 27;13(3):736. doi: 10.3390/jcm13030736.
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Evidence-based position paper of the UEMS PRM on the role of Physical and Rehabilitation Medicine (PRM) physician in the management of children and adults with spinal dysraphism.欧洲医学科学院物理医学与康复医学分会关于物理医学与康复医学医师在管理脊柱发育不良的儿童和成人中的作用的循证立场文件。
Eur J Phys Rehabil Med. 2022 Aug;58(4):511-519. doi: 10.23736/S1973-9087.22.07536-0. Epub 2022 May 16.
本文引用的文献
1
Scientific methodology of the development of the Guidelines for the Care of People with Spina Bifida: An initiative of the Spina Bifida Association.《脊髓脊膜膨出人士照护指南制定的科学方法学：脊髓脊膜膨出协会的一项倡议》。
Disabil Health J. 2020 Apr;13(2):100816. doi: 10.1016/j.dhjo.2019.06.005. Epub 2019 Jun 18.
2
Effect of recombinant human growth hormone therapy on blood lipid and carotid intima-media thickness in children with growth hormone deficiency.重组人生长激素治疗对生长激素缺乏症儿童血脂及颈动脉内膜中层厚度的影响。
Pediatr Res. 2018 May;83(5):954-960. doi: 10.1038/pr.2017.271. Epub 2018 Jan 17.
3
Muscle and skeletal health in children and adolescents with GH deficiency.生长激素缺乏症儿童和青少年的肌肉与骨骼健康
Best Pract Res Clin Endocrinol Metab. 2016 Dec;30(6):771-783. doi: 10.1016/j.beem.2016.11.012. Epub 2016 Nov 25.
4
Cut-off limits of the peak GH response to stimulation tests for the diagnosis of GH deficiency in children and adolescents: study in patients with organic GHD.儿童和青少年生长激素（GH）缺乏症诊断中刺激试验的GH峰值反应截断值：对器质性生长激素缺乏症患者的研究
Eur J Endocrinol. 2016 Jul;175(1):41-7. doi: 10.1530/EJE-16-0105. Epub 2016 May 4.
5
Fracture risk in adult patients treated with growth hormone replacement therapy for growth hormone deficiency: a prospective observational cohort study.生长激素缺乏症成年患者接受生长激素替代治疗后的骨折风险：一项前瞻性观察性队列研究。
Lancet Diabetes Endocrinol. 2015 May;3(5):331-8. doi: 10.1016/S2213-8587(15)00098-4. Epub 2015 Apr 12.
6
Advances in the care of children with spina bifida.脊柱裂患儿护理的进展。
Adv Pediatr. 2014 Aug;61(1):33-74. doi: 10.1016/j.yapd.2014.03.007.
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Cluster of cardiometabolic risk factors in children with GH deficiency: a prospective, case-control study.生长激素缺乏症患儿的心血管代谢危险因素聚集：一项前瞻性病例对照研究。
Clin Endocrinol (Oxf). 2014 Jun;80(6):856-62. doi: 10.1111/cen.12393. Epub 2014 Jan 16.
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Nominal group technique: an effective method for obtaining group consensus.名义群体技术：达成群体共识的有效方法。
Int J Nurs Pract. 2012 Apr;18(2):188-94. doi: 10.1111/j.1440-172X.2012.02017.x.
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Methods of formal consensus in classification/diagnostic criteria and guideline development.分类/诊断标准和指南制定中的正式共识方法。
Semin Arthritis Rheum. 2011 Oct;41(2):95-105. doi: 10.1016/j.semarthrit.2010.12.001. Epub 2011 Mar 21.
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Childhood growth hormone deficiency, bone density, structures and fractures: scrutinizing the evidence.儿童生长激素缺乏症、骨密度、结构和骨折：仔细审查证据。
Clin Endocrinol (Oxf). 2010 Mar;72(3):281-9. doi: 10.1111/j.1365-2265.2009.03686.x. Epub 2009 Aug 29.
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