建立诚信，创造个人赋权机会：症状和技术管理资源（COPE-STAR）干预。
Establishing fidelity for the creating opportunities for personal empowerment: Symptom and technology management resources (COPE-STAR) intervention.
机构信息
School of Nursing, Byrdine F. Lewis College of Nursing and Health Professions, Georgia State University, Atlanta, Georgia, USA.
Lewis Distinguished Chair in Nursing, School of Nursing, Byrdine F. Lewis College of Nursing and Health Professions, Georgia State University, Atlanta, Georgia, USA.
出版信息
J Adv Nurs. 2020 Dec;76(12):3440-3447. doi: 10.1111/jan.14552. Epub 2020 Sep 29.
AIM
To establish intervention fidelity for the Creating Opportunities for Personal Empowerment: Symptom and Technology Management Resources web-based intervention to assist caregivers of children aged 1-5 years in managing their child's symptoms and medical technology of tracheostomies and feeding tubes at home.
DESIGN
Descriptive study of the strategies used to establish intervention fidelity, specifically using expert and caregiver reviewers.
METHODS
To establish fidelity of the intervention, experts and caregivers were asked to evaluate the usefulness, ease of use, and acceptability of the intervention and provide any suggestions for the modules. Caregivers provided caregiver and child characteristics and were administered a health literacy measure, the Newest Vital Sign. Intervention fidelity was established from April 2019-July 2019.
RESULTS/FINDINGS: Expert and caregiver reviewers (N = 13) all agreed or strongly agreed that the intervention was useful, easy to use, and acceptable. In addition, caregiver reviewers provided care to children who required multiple technologies and a variety of care needs at home and confirmed adequate health literacy (N = 5).
CONCLUSION
The use of expert and caregiver reviewers was very beneficial in establishing intervention fidelity. Caregivers are experts in the care of their child and provide valuable feedback based on their daily experiences at home. Experts provided evidence-based feedback.
IMPACT
This nursing intervention addresses caregivers of children who require medical technology by targeting caregiver management for common symptoms, related technologies, and resources for the child and caregiver in the home setting. Intervention fidelity was established and expert and caregiver reviewers confirmed the usefulness, ease of use, and acceptability of the intervention. This study is essential to nursing, other healthcare providers, and healthcare systems in planning and implementing programmes and services for children and their caregivers and for nurse researchers establishing intervention fidelity.
TRIAL REGISTRATION
This study is not designated as a clinical trial per NIH/NINR study and grant proposal guidelines.
目的
为“创造个人赋权机会：症状和技术管理资源”网络干预措施建立干预一致性，以帮助 1-5 岁儿童的照顾者在家中管理其儿童的症状和气管切开术及喂养管等医疗技术。
设计
描述性研究，用于建立干预一致性的策略，特别是使用专家和照顾者评审员。
方法
为了建立干预的一致性，要求专家和照顾者评估干预的有用性、易用性和可接受性，并为模块提供任何建议。照顾者提供照顾者和儿童的特征，并进行健康素养测量，即最新生命体征。干预一致性是在 2019 年 4 月至 7 月建立的。
结果/发现：专家和照顾者评审员（N=13）均同意或强烈同意干预措施有用、易于使用且可接受。此外，照顾者评审员照顾需要多种技术和各种家庭护理需求的儿童，并确认具有足够的健康素养（N=5）。
结论
使用专家和照顾者评审员非常有助于建立干预一致性。照顾者是他们孩子护理方面的专家，根据他们在家中的日常经验提供有价值的反馈。专家提供了基于证据的反馈。
影响
这项护理干预措施针对需要医疗技术的儿童照顾者，针对常见症状、相关技术以及儿童和照顾者在家庭环境中的资源进行管理。干预一致性已经建立，专家和照顾者评审员确认了干预措施的有用性、易用性和可接受性。这项研究对于护理、其他医疗保健提供者和医疗保健系统规划和实施儿童及其照顾者的计划和服务以及护士研究人员建立干预一致性至关重要。
试验注册
根据 NIH/NINR 研究和资助提案指南，本研究不被指定为临床试验。
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