Department of Pediatric Gastroenterology, Emma Children's Hospital, Box 22666, 1100 DD, Amsterdam, The Netherlands.
Department of Dietetics, Emma Children's Hospital, Box 22666, 1100 DD, Amsterdam, The Netherlands.
Clin Nutr. 2019 Feb;38(1):234-239. doi: 10.1016/j.clnu.2018.01.027. Epub 2018 Feb 15.
BACKGROUND & AIMS: Tube feeding ensures growth, but can have negative effects on health and psychosocial functioning, resulting in health related costs. The aims of this study were to determine the prevalence of pediatric home tube feeding in the Netherlands and to assess the clinical characteristics of tube fed children and side effects of tube feeding.
The prevalence of pediatric home tube feeding was calculated using data (2010-2014) of both the Medicines and Devices Information Project of the National Health Care Institute, and Statistics Netherlands. Subsequently, a cross-sectional parental online questionnaire was used to obtain data regarding clinical characteristics of tube fed children and side effects of tube feeding. Children aged ≤17 years receiving tube feeding ≥2 weeks were included.
The prevalence of pediatric home tube feeding was 83-92:100,000 children/year. Parents of 279 children (53% boys) completed the questionnaire. Most children (88%) had ≥1 medical diagnosis, of which congenital abnormalities (42%), perinatal problems (38%) and neurologic diseases (16%) were most common. They had gastrostomy (60%), nasogastric (33%), or other tube types (7%). Parents of most children (74%) mentioned ≥1 side effect due to tube feeding. Vomiting (37%), lack of appetite (29%), and gagging (29%) were reported most frequently. Nasogastric tube placement resolved in negative experiences (94%).
The prevalence of pediatric home tube feeding varies between 83 and 92:100,000 children/year in the Netherlands. These children are characterized by various underlying medical diagnoses. Side effects of tube feeding are frequently reported by parents. Further studies should focus on methods reducing side effects.
管饲喂养可确保患儿生长，但会对健康和社会心理功能产生负面影响，导致与健康相关的费用增加。本研究旨在确定荷兰儿科居家管饲喂养的流行率，并评估接受管饲喂养患儿的临床特征和管饲喂养的副作用。
使用国家卫生保健研究所药品和设备信息项目和荷兰统计局的数据（2010-2014 年），计算儿科居家管饲喂养的流行率。随后，使用父母在线横断面问卷调查，获取接受管饲喂养>2 周的患儿的临床特征和管饲喂养副作用的数据。
儿科居家管饲喂养的流行率为 83-92：100,000 名儿童/年。279 名儿童（53%为男孩）的家长完成了问卷。大多数患儿（88%）有≥1 种医学诊断，其中先天性异常（42%）、围产期问题（38%）和神经系统疾病（16%）最常见。他们的置管类型为胃造口术（60%）、鼻胃管（33%）或其他类型（7%）。大多数患儿（74%）的家长提到≥1 种因管饲喂养引起的副作用。呕吐（37%）、食欲不振（29%）和呛咳（29%）最常被报告。鼻胃管置管的负面体验得到解决（94%）。
荷兰儿科居家管饲喂养的流行率在 83-92：100,000 名儿童/年之间。这些患儿的特征为存在各种潜在的医学诊断。管饲喂养的副作用常被家长报告。进一步的研究应集中于减少副作用的方法。
