NICM Health Research Institute, Western Sydney University, Penrith, NSW, 2751, Australia.
Translational Health Research Institute, Western Sydney University, Penrith, NSW, 2751, Australia.
Sci Rep. 2020 Oct 1;10(1):16253. doi: 10.1038/s41598-020-73389-2.
Chronic pelvic pain (CPP) affects a significant number of women worldwide. Internationally, people with endometriosis report significant negative impact across many areas of their life. We aimed to use an online survey using the EndoCost tool to determine if there was any difference in the impact of CPP in those with vs. those without a confirmed diagnosis of endometriosis, and if there was any change in diagnostic delay since the introduction of clinical guidelines in 2005. 409 responses were received; 340 with a diagnosis of endometriosis and 69 with no diagnosis. People with CPP, regardless of diagnosis, reported moderate to severe dysmenorrhea and non-cyclical pelvic pain. Dyspareunia was also common. Significant negative impact was reported for social, academic, and sexual/romantic relationships in both cohorts. In the endometriosis cohort there was a mean diagnostic delay of eight years, however there was a reduction in both the diagnostic delay (p < 0.001) and number of doctors seen before diagnosis (p < 0.001) in those presenting more recently. Both endometriosis and CPP have significant negative impact. Whilst there is a decrease in the time to diagnosis, there is an urgent need for improved treatment options and support for women with the disease once the diagnosis is made.
慢性盆腔疼痛（CPP）影响全球众多女性。国际上，子宫内膜异位症患者报告称，其生活的许多方面都受到显著的负面影响。我们旨在使用 EndoCost 工具进行在线调查，以确定在确诊与未确诊子宫内膜异位症的人群中，CPP 的影响是否存在差异，以及自 2005 年临床指南发布以来，诊断延迟是否发生了变化。共收到 409 份回复，其中 340 人被诊断为子宫内膜异位症，69 人未被诊断。无论是否诊断为 CPP，患者都报告有中度至重度痛经和非周期性盆腔疼痛。性交困难也很常见。两组患者的社会、学术和性/浪漫关系都受到显著的负面影响。在子宫内膜异位症组中，平均诊断延迟为八年，但最近就诊的患者的诊断延迟（p<0.001）和就诊医生数量（p<0.001）均有所减少。子宫内膜异位症和 CPP 都有显著的负面影响。尽管诊断时间有所缩短，但仍迫切需要为确诊后的患者提供更好的治疗选择和支持。
