Ingemann Christine, Hansen Nathaniel Fox, Hansen Nanna Lund, Jensen Kennedy, Larsen Christina Viskum Lytken, Chatwood Susan
National Institute of Public Health, University of Southern Denmark Faculty of Health Sciences, Copenhagen, Denmark
Institute of Nursing and Health Sciences, University of Greenland, Nuuk, Greenland.
BMJ Open. 2020 Oct 5;10(10):e042973. doi: 10.1136/bmjopen-2020-042973.
Patient experiences with health systems constitute a crucial pillar of quality care. Across the Arctic, patients' interactions with the healthcare system are influenced by challenges of access, historical inequities and social determinants. This scoping review sought to describe the range and nature of peer-reviewed literature on patient experience studies conducted within the circumpolar region.
In a partnership between Danish/Greenlandic, Canadian and American research teams, a scoping review of published research exploring patient experiences in circumpolar regions was undertaken.
Seven electronic databases were queried: MEDLINE, Embase, Scopus, 'Global Health 1910 to 2019 Week 11', CINAHL, PsycINFO and SveMed+.
Articles were eligible for inclusion if they (a) took place in the circumpolar region, (b) reported patients' perspective and (c) were focussed primarily on patient experiences with care, rather than satisfaction with treatment outcome.
Title and abstract screening, full-text review and data extraction was conducted by four researchers. Bibliometric information such as publication date and country of origin was extracted, as was information regarding study design and whether or not the article contained results relevant to the themes of Indigenous values, rural and remote context, telehealth and climate change. Two researchers then synthesised and characterised results relevant to these themes.
Of the 2824 articles initially found through systematic searches in seven databases, 96 articles were included for data extraction. Findings from the review included unique features related to Indigenous values, rural and remote health, telehealth and climate change.
The review findings provide an overview of patient experiences measures used in circumpolar nations. These findings can be used to inform health system improvement based on patient needs in the circumpolar context, as well as in other regions that share common features. This work can be further contextualized through Indigenous methodologies such as sharing circles and community based participatory methods.
患者在医疗系统中的体验是优质护理的关键支柱。在整个北极地区，患者与医疗保健系统的互动受到就医挑战、历史不平等和社会决定因素的影响。本范围综述旨在描述环极地区开展的患者体验研究的同行评议文献的范围和性质。
丹麦/格陵兰、加拿大和美国研究团队合作，对已发表的探索环极地区患者体验的研究进行了范围综述。
查询了七个电子数据库：MEDLINE、Embase、Scopus、“1910年至2019年第11周全球卫生”、CINAHL、PsycINFO和SveMed+。
符合以下条件的文章可纳入：(a) 在环极地区进行；(b) 报告患者的观点；(c) 主要关注患者的护理体验，而非对治疗结果的满意度。
由四名研究人员进行标题和摘要筛选、全文审查及数据提取。提取了文献计量信息，如出版日期和原产国，以及有关研究设计的信息，以及文章是否包含与土著价值观、农村和偏远地区背景、远程医疗和气候变化主题相关的结果。然后，两名研究人员对与这些主题相关的结果进行了综合和描述。
通过对七个数据库的系统检索，最初找到2824篇文章，其中96篇文章被纳入数据提取。综述结果包括与土著价值观、农村和偏远地区卫生、远程医疗和气候变化相关的独特特征。
综述结果概述了环极国家使用的患者体验测量方法。这些结果可用于根据环极地区患者的需求，以及其他具有共同特征地区的患者需求来改进卫生系统。这项工作可以通过土著方法，如分享圈和基于社区的参与性方法，进一步结合具体情况进行。
