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1
Hoping for the best, planning for the worst: Palliative care approach to Parkinson disease during the COVID-19 pandemic.抱最好的希望,做最坏的打算:COVID-19 大流行期间帕金森病的姑息治疗方法。
Parkinsonism Relat Disord. 2020 Nov;80:203-205. doi: 10.1016/j.parkreldis.2020.09.042. Epub 2020 Oct 6.
2
The impact of COVID-19 on palliative care for people with Parkinson's and response to future pandemics.COVID-19 对帕金森病患者姑息治疗的影响及对未来大流行的应对。
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The emerging field of palliative care for Parkinson's disease. Letter from the guest editors.帕金森病姑息治疗的新兴领域。客座编辑来信
Parkinsonism Relat Disord. 2012 Dec;18 Suppl 3:S1. doi: 10.1016/j.parkreldis.2012.10.012.
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Carers bear burden of home care.
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Palliative care for Parkinson's disease: has the time come?帕金森病的姑息治疗:时机是否已到?
Curr Neurol Neurosci Rep. 2015 May;15(5):26. doi: 10.1007/s11910-015-0542-4.

引用本文的文献

1
Parkinson's disease and Covid-19: Is there an impact of ethnicity and the need for palliative care.帕金森病与新冠病毒:种族是否有影响,是否需要姑息治疗。
Int Rev Neurobiol. 2022;165:229-249. doi: 10.1016/bs.irn.2022.03.004. Epub 2022 Apr 27.

本文引用的文献

1
Recommendations for Deep Brain Stimulation Device Management During a Pandemic.在大流行期间对深部脑刺激器管理的建议。
J Parkinsons Dis. 2020;10(3):903-910. doi: 10.3233/JPD-202072.
2
The Impact of the COVID-19 Pandemic on Parkinson's Disease: Hidden Sorrows and Emerging Opportunities.新冠疫情对帕金森病的影响:隐藏的困境与新出现的机遇
J Parkinsons Dis. 2020;10(2):351-354. doi: 10.3233/JPD-202038.
3
Factors associated with hospitalisation among people with Parkinson's disease - A systematic review and meta-analysis.与帕金森病患者住院相关的因素——系统评价和荟萃分析。
Parkinsonism Relat Disord. 2020 Feb;71:66-72. doi: 10.1016/j.parkreldis.2020.02.018. Epub 2020 Feb 28.
4
Non-motor features of Parkinson disease.帕金森病的非运动症状。
Nat Rev Neurosci. 2017 Jul;18(7):435-450. doi: 10.1038/nrn.2017.62. Epub 2017 Jun 8.
5
The "surprise question" for predicting death in seriously ill patients: a systematic review and meta-analysis.预测重症患者死亡的“意外问题”:系统评价与荟萃分析
CMAJ. 2017 Apr 3;189(13):E484-E493. doi: 10.1503/cmaj.160775.
6
When open-ended questions don't work: the role of palliative paternalism in difficult medical decisions.当开放式问题不起作用时:姑息性家长主义在困难医疗决策中的作用。
J Palliat Med. 2014 Apr;17(4):415-20. doi: 10.1089/jpm.2013.0408. Epub 2014 Mar 3.
7
Hope for the best, and prepare for the worst.抱最好的希望,做最坏的打算。
Ann Intern Med. 2003 Mar 4;138(5):439-43. doi: 10.7326/0003-4819-138-5-200303040-00028.

抱最好的希望,做最坏的打算:COVID-19 大流行期间帕金森病的姑息治疗方法。

Hoping for the best, planning for the worst: Palliative care approach to Parkinson disease during the COVID-19 pandemic.

机构信息

Department of Neurology, David Geffen School of Medicine, UCLA, Los Angeles, CA, USA; PADRECC, West Los Angeles Veterans Administration, Los Angeles, CA, USA.

Departments of Neurology and Medicine, University of Colorado, Anschutz Medical Campus, Aurora, CO, USA.

出版信息

Parkinsonism Relat Disord. 2020 Nov;80:203-205. doi: 10.1016/j.parkreldis.2020.09.042. Epub 2020 Oct 6.

DOI:10.1016/j.parkreldis.2020.09.042
PMID:33046384
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7537621/
Abstract

Palliative care emphasizes expertise in handling difficult conversations, discussing patients' wishes and supporting the caregiver(s). Here we outline the palliative approach of hoping for the best while preparing for the worst in several "what if" scenarios for people with Parkinson disease and their families during the COVID-19 pandemic.

摘要

缓和医疗强调处理困难对话、讨论患者意愿和支持护理人员的专业知识。在这里,我们概述了在 COVID-19 大流行期间,对于帕金森病患者及其家属,在几种“如果……怎么办”的假设情景中,尽力而为、同时做好最坏打算的缓和医疗方法。