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帕金森病的姑息治疗:时机是否已到?

Palliative care for Parkinson's disease: has the time come?

机构信息

Division of Neurology, Department of Medicine, University of Alberta, Edmonton, Alberta, Canada,

出版信息

Curr Neurol Neurosci Rep. 2015 May;15(5):26. doi: 10.1007/s11910-015-0542-4.

Abstract

Although Parkinson's disease (PD) is traditionally viewed as a movement disorder which affects quality of life, recent literature has revealed an increased mortality, a high burden of difficult-to-manage non-motor symptoms (e.g., pain, fatigue), high caregiver distress, and a high utilization of medical services especially in the last year of life. Current medical systems have yet to adequately respond to this mounting evidence through the adoption of palliative care practices and through the provision of palliative care services to both PD patients and to affected families. This holistic, interdisciplinary approach to practice would enhance care delivery, identify and address unmet needs, and avoid interventions and hospitalizations especially in the last months of life. As we approach an era of increased life expectancy, increasing comorbidities among patients, and escalating healthcare costs, physicians must be proactive in focusing on quality of life, reducing medical interventions, and respecting patient autonomy.

摘要

尽管帕金森病(PD)传统上被视为一种影响生活质量的运动障碍,但最近的文献表明,PD 患者的死亡率较高,难以管理的非运动症状负担沉重(例如,疼痛、疲劳),护理人员负担沉重,医疗服务利用率高,特别是在生命的最后一年。当前的医疗系统尚未通过采用姑息治疗实践以及为 PD 患者及其受影响的家庭提供姑息治疗服务来充分应对这一不断增加的证据。这种整体的、跨学科的实践方法将增强护理服务的提供,确定和解决未满足的需求,并避免干预措施和住院治疗,尤其是在生命的最后几个月。随着我们进入一个预期寿命增加、患者合并症增多和医疗保健成本上升的时代,医生必须积极主动地关注生活质量,减少医疗干预,并尊重患者自主权。

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