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如何与完全隔离的家庭进行沟通。

How to communicate with families living in complete isolation.

作者信息

Mistraletti Giovanni, Gristina Giuseppe, Mascarin Sara, Iacobone Emanuele, Giubbilo Ilaria, Bonfanti Silvia, Fiocca Federico, Fullin Giorgio, Fuselli Ennio, Bocci Maria Grazia, Mazzon Davide, Giusti Gian Domenico, Galazzi Alessandro, Negro Alessandra, De Iaco Fabio, Gandolfo Enrico, Lamiani Giulia, Del Negro Silvia, Monti Laura, Salvago Fabrizia, Di Leo Silvia, Gribaudi Maria Nefeli, Piccinni Mariassunta, Riccioni Luigi, Giannini Alberto, Livigni Sergio, Maglione Carla, Vergano Marco, Marinangeli Franco, Lovato Luisa, Mezzetti Andrea, Drigo Elio, Vegni Elena, Calva Sally, Aprile Anna, Losi Gianfranco, Fontanella Lucia, Calegari Giulio, Ansaloni Cristina, Pugliese Francesco Rocco, Manca Salvatore, Orsi Luciano, Moggia Fabrizio, Scelsi Silvia, Corcione Antonio, Petrini Flavia

机构信息

Dipartimento di Fisiopatologia Medico-Chirurgica e dei Trapianti, Università degli Studi di Milano, Milano, Italy

SC Anestesia e Rianimazione, Ospedale San Paolo - Polo Universitario, ASST Santi Paolo e Carlo, Milano, Italy.

出版信息

BMJ Support Palliat Care. 2024 Dec 19;14(e3):e2954-e2965. doi: 10.1136/bmjspcare-2020-002633.

Abstract

IMPORTANCE

During the SARS-CoV-2 pandemic, a complete physical isolation has been worldwide introduced. The impossibility of visiting their loved ones during the hospital stay causes additional distress for families: in addition to the worries about clinical recovery, they may feel exclusion and powerlessness, anxiety, depression, mistrust in the care team and post-traumatic stress disorder. The impossibility of conducting the daily meetings with families poses a challenge for healthcare professionals.

OBJECTIVE

This paper aims to delineate and share consensus statements in order to enable healthcare team to provide by telephone or video calls an optimal level of communication with patient's relatives under circumstances of complete isolation.

EVIDENCE REVIEW

PubMed, Cochrane Database of Systematic Reviews, Database of Abstracts and Reviews of Effectiveness and the AHCPR Clinical Guidelines and Evidence Reports were explored from 1999 to 2019. Exclusion criteria were: poor or absent relevance regarding the aim of the consensus statements, studies prior to 1999, non-English language. Since the present pandemic context is completely new, unexpected and unexplored, there are not randomised controlled trials regarding clinical communication in a setting of complete isolation. Thus, a multiprofessional taskforce of physicians, nurses, psychologists and legal experts, together with some family members and former intensive care unit patients was established by four Italian national scientific societies. Using an e-Delphi methodology, general and specific questions were posed, relevant topics were argumented, until arriving to delineate position statements and practical checklist, which were set and evaluated through an evidence-based consensus procedure.

FINDINGS

Ten statements and two practical checklists for phone or video calls were drafted and evaluated; they are related to who, when, why and how family members must be given clinical information under circumstances of complete isolation.

CONCLUSIONS AND RELEVANCE

The statements and the checklists offer a structured methodology in order to ensure a good-quality communication between healthcare team and family members even in isolation, confirming that time dedicated to communication has to be intended as a time of care.

摘要

重要性

在严重急性呼吸综合征冠状病毒2(SARS-CoV-2)大流行期间,全球范围内都实施了完全的物理隔离。患者住院期间无法探视亲人给家庭带来了额外的痛苦:除了担心临床康复外,他们可能会感到被排斥和无助、焦虑、抑郁、对护理团队不信任以及出现创伤后应激障碍。无法与家人进行日常会面给医护人员带来了挑战。

目的

本文旨在阐述并分享共识声明,以使医护团队能够在完全隔离的情况下通过电话或视频通话与患者亲属进行最佳水平的沟通。

证据综述

检索了1999年至2019年的PubMed、Cochrane系统评价数据库、有效性摘要与综述数据库以及美国卫生保健政策与研究机构(AHCPR)临床指南和证据报告。排除标准为:与共识声明的目标相关性差或无关、1999年之前的研究、非英语语言。由于当前的大流行背景是全新的、意外的且未被探索过的,所以没有关于完全隔离环境下临床沟通的随机对照试验。因此,四个意大利国家科学学会成立了一个由医生、护士、心理学家和法律专家组成的多专业特别工作组,还包括一些家庭成员和前重症监护病房患者。采用电子德尔菲法提出一般性和特定性问题,对相关主题进行论证,直至确定立场声明和实用清单,并通过基于证据的共识程序进行设定和评估。

研究结果

起草并评估了十条关于电话或视频通话的声明和两份实用清单;它们涉及在完全隔离情况下必须向家庭成员提供临床信息的人员、时间、原因和方式。

结论与意义

这些声明和清单提供了一种结构化方法,以确保即使在隔离状态下医护团队与家庭成员之间也能进行高质量的沟通,证实了用于沟通的时间应被视为护理时间。

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