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新加坡痴呆症照顾者生活质量量表的开发与评估。

Development and evaluation of the Singapore Caregiver Quality of Life Scale - Dementia.

作者信息

Cheung Yin Bun, Teo Irene, Lim Wee Shiong, Hum Allyn, Neo Shirlyn H S, Yang Grace M, Lee Geok Ling, Tan Gretchen, Seow Dennis C C

机构信息

Program in Health Services & Systems Research and Centre for Quantitative Medicine, Duke-NUS Medical School, Level 6, Academia, 20 College Road, Singapore, 169856, Singapore.

Centre for Child Health Research, Tampere University, Tampere, Finland.

出版信息

J Patient Rep Outcomes. 2020 Oct 19;4(1):84. doi: 10.1186/s41687-020-00252-3.

Abstract

PURPOSE

To develop and evaluate a measurement scale for multi-domain assessment of the quality of life of family caregivers of persons with dementia (PWD) in Singapore, a multi-ethic society in South-East Asia where English is the lingua franca.

METHODS

Items from the Singapore Caregiver Quality of Life Scale (SCQOLS), which was originally developed in the context of advanced cancers, were adopted as candidate items. Furthermore, a multi-disciplinary panel reviewed dementia-specific caregiver quality of life scales to identified items not covered in SCQOLS for inclusion as candidate items. A pilot study of 31 family caregivers of PWD was conducted to solicit inputs on candidate items; 102 family caregivers of PWD were surveyed for evaluation of the scale's measurement properties.

RESULTS

Factor analysis confirmed a 5-domain structure of the 63 candidate items. The Root Mean Square Error of Approximation was 0.056 and Comparative Fit Index was 0.928. Convergent validity of the total and domain scores was demonstrated in terms of correlation with the Brief Assessment Scale for Caregivers and its sub-scales. The scores also showed an expected pattern of correlation with hours spent on caregiving per week. Known-group validity was demonstrated by differences in mean scores between functional staging groups. Cronbach's alpha of the total and domain scores ranged from 0.89 to 0.95. Test-retest reliability (intraclass correlation coefficient) ranged from 0.77 to 0.92.

CONCLUSIONS

The Singapore Caregiver Quality of Life Scale - Dementia (SCQOLS-D) is a quality of life measurement scale for family caregivers of persons with dementia that is valid and reliable.

摘要

目的

在新加坡这个以英语为通用语的东南亚多民族社会,开发并评估一种用于多领域评估痴呆症患者(PWD)家庭照顾者生活质量的测量量表。

方法

最初在晚期癌症背景下开发的新加坡照顾者生活质量量表(SCQOLS)中的项目被用作候选项目。此外,一个多学科小组审查了针对痴呆症照顾者生活质量的特定量表,以确定SCQOLS中未涵盖的项目作为候选项目纳入。对31名痴呆症患者的家庭照顾者进行了一项试点研究,以征求对候选项目的意见;对102名痴呆症患者的家庭照顾者进行了调查,以评估该量表的测量属性。

结果

因子分析证实了63个候选项目的五领域结构。近似均方根误差为0.056,比较拟合指数为0.928。总量表和领域得分的收敛效度通过与照顾者简要评估量表及其子量表的相关性得以证明。得分还显示出与每周照顾时间的预期相关模式。功能分期组之间的平均得分差异证明了已知组效度。总量表和领域得分的克朗巴哈系数在0.89至0.95之间。重测信度(组内相关系数)在0.77至0.92之间。

结论

新加坡照顾者生活质量量表 - 痴呆症(SCQOLS-D)是一种用于痴呆症患者家庭照顾者生活质量的有效且可靠的测量量表。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ab74/7572987/e53d8a950881/41687_2020_252_Fig1_HTML.jpg

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