Lee Chun Fan, Wee Hwee Lin, Teo Irene, Lee Geok Ling, Thumboo Julian, Cheung Yin Bun, Neo Shirlyn H S
Centre for Quantitative Medicine, Duke-NUS Medical School, Level 6, Academia, 20 College Road, Singapore, 169856, Singapore.
Saw Swee Hock School of Public Health, National University of Singapore (NUS), National University Health System (NUHS), 12 Science Drive 2, Singapore, 117549, Singapore.
J Patient Rep Outcomes. 2021 Jan 29;5(1):17. doi: 10.1186/s41687-021-00290-5.
The 15- and 10-item short forms of the Singapore Caregiver Quality of Life Scale (SCQOLS-15 and SCQOLS-10) were recently developed as a quick assessment of caregiver quality of life. Reference values describing the distribution of the total and domain scores are available for the full-length version, but they are not yet available for the short forms. This study aimed to estimate the reference values for the short forms.
Data from a cross-sectional survey of 612 family caregivers of patients with advanced cancer in Singapore were fitted in quantile regression models. Percentiles were estimated by regressing the short forms' scores on caregiver characteristics. Classification by the reference values for the short forms and the full-length version were compared and agreement was evaluated.
The caregiver's role in caring for the patient and the patient's performance status were associated with the percentiles of the total scores and most domain scores (each Bonferroni-adjusted p-value, P, < 0.05). Higher-educated caregivers were categorized into higher percentiles according to the SCQOLS-15 and SCQOLS-10 total scores and the SCQOLS-15 Mental Well-being and Financial Well-being domain scores (each P < 0.05). Ethnicity was associated with the SCQOLS-15 Physical Well-being and Experience & Meaning domains (each P < 0.05). The percentiles for the short forms showed moderate to substantial agreement with those for the full-length version in terms of classifying caregivers into percentile intervals (quadratic-weighted Kappa = 0.72 to 0.92).
Reference values for the SCQOLS-15 and SCQOLS-10 were estimated in relation to caregiver characteristics to facilitate interpretation of the short form scores.
新加坡照顾者生活质量量表的15项和10项简版(SCQOLS - 15和SCQOLS - 10)最近被开发出来,用于快速评估照顾者的生活质量。描述全长版本总分和领域得分分布的参考值已有,但简版的参考值尚未可得。本研究旨在估计简版的参考值。
对新加坡612名晚期癌症患者的家庭照顾者进行横断面调查的数据,拟合分位数回归模型。通过将简版得分与照顾者特征进行回归来估计百分位数。比较简版和全长版本参考值的分类情况并评估一致性。
照顾者在照顾患者中的角色以及患者的功能状态与总分和大多数领域得分的百分位数相关(每个经Bonferroni校正的p值,P,<0.05)。根据SCQOLS - 15和SCQOLS - 10总分以及SCQOLS - 15心理健康和财务状况领域得分,受教育程度较高的照顾者被归入较高百分位数(每个P <0.05)。种族与SCQOLS - 15身体健康和经历与意义领域相关(每个P <0.05)。在将照顾者分类到百分位数区间方面,简版的百分位数与全长版本的百分位数显示出中度到高度的一致性(二次加权Kappa = 0.72至0.92)。
根据照顾者特征估计了SCQOLS - 15和SCQOLS - 10的参考值,以方便对简版得分进行解释。