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护士如何支持缺乏同意能力的老年人参与研究。

How nurses can support the inclusion in research of older people who lack capacity to consent.

机构信息

Centre for Trials Research, Cardiff University, Cardiff, Wales.

出版信息

Nurs Older People. 2021 Mar 30;33(2):26-31. doi: 10.7748/nop.2020.e1267. Epub 2020 Oct 21.

DOI:10.7748/nop.2020.e1267
PMID:33084258
Abstract

Research is important because it underpins evidence-based care. However, people who lack capacity to consent are often excluded from research, due partly to ethical concerns and practical challenges, and partly to a lack of awareness among professionals of the legal framework that supports their inclusion. The COVID-19 pandemic, which has extensively affected care home residents, has reinforced the importance of including older people with cognitive impairment in research. Nurses who care for older people with impaired cognition have an important role in ensuring these people have the opportunity to contribute to and benefit from research. This article discusses some of the challenges associated with the inclusion in research of older people who lack capacity to consent, including the involvement of relatives and friends in decision-making. The article describes the findings of recent research and shares resources with the aim of supporting nurses to ensure that older people in their care who lack capacity can participate in research.

摘要

研究很重要,因为它是循证护理的基础。然而,由于伦理问题和实际挑战,以及专业人员对支持其纳入的法律框架缺乏认识,往往将没有能力同意的人排除在研究之外。COVID-19 大流行广泛影响了养老院居民,这加强了将认知障碍的老年人纳入研究的重要性。照顾认知障碍老年人的护士在确保这些人有机会参与研究并从中受益方面发挥着重要作用。本文讨论了与将没有能力同意的老年人纳入研究相关的一些挑战,包括亲属和朋友参与决策的问题。本文描述了最近研究的结果,并分享了资源,旨在支持护士确保他们照顾的没有能力的老年人能够参与研究。

相似文献

1
How nurses can support the inclusion in research of older people who lack capacity to consent.护士如何支持缺乏同意能力的老年人参与研究。
Nurs Older People. 2021 Mar 30;33(2):26-31. doi: 10.7748/nop.2020.e1267. Epub 2020 Oct 21.
2
Protection by exclusion? The (lack of) inclusion of adults who lack capacity to consent to research in clinical trials in the UK.排除保护?英国临床试验中未将无能力同意参与研究的成年人纳入其中。
Trials. 2019 Aug 5;20(1):474. doi: 10.1186/s13063-019-3603-1.
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Culture, consent, costs and care homes: enabling older people with dementia to participate in research.文化、同意、成本与养老院:让痴呆症老年人参与研究。
Aging Ment Health. 2011 May;15(4):475-81. doi: 10.1080/13607863.2010.543659.
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Safeguarding research subjects who lack decision-making capacity.保护缺乏决策能力的研究对象。
Br J Community Nurs. 2010 Oct;15(10):508-9, 511-2. doi: 10.12968/bjcn.2010.15.10.78763.
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An under-represented and underserved population in trials: methodological, structural, and systemic barriers to the inclusion of adults lacking capacity to consent.在试验中代表性不足和服务不足的人群:纳入无能力同意成年人的方法学、结构和系统障碍。
Trials. 2020 May 29;21(1):445. doi: 10.1186/s13063-020-04406-y.
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Consent and capacity: a guide for district nurses.同意与行为能力:地区护士指南
Br J Community Nurs. 2010 Sep;15(9):456-60. doi: 10.12968/bjcn.2010.15.9.78106.
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Safeguarding research participants who lack decision-making capacity.保护缺乏决策能力的研究参与者。
Br J Nurs. 2016 Jul 14;25(13):766-7. doi: 10.12968/bjon.2016.25.13.766.
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Undertaking research on people who lack decision-making capacity.对缺乏决策能力的人进行研究。
Br J Community Nurs. 2017 Oct 2;22(10):511-513. doi: 10.12968/bjcn.2017.22.10.511.
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Consent, including advanced consent, of older adults to research in care homes: a qualitative study of stakeholders' views in South Wales.在养老院进行研究的老年人同意,包括预先同意:南威尔士利益相关者观点的定性研究。
Trials. 2013 Aug 9;14:247. doi: 10.1186/1745-6215-14-247.
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Understanding and using the Mental Capacity Act.理解与运用《精神能力法案》。
Nurs Times. 2014;110(21):16-8.

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Pragmatic Trials in Long-Term Care: Research Challenges and Potential Solutions in Relation to Key Areas of Care.
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Pragmatic Trials in Long-Term Care: Research Challenges and Potential Solutions in Relation to Key Areas of Care.长期护理中的实用临床试验:与关键护理领域相关的研究挑战和潜在解决方案。
J Am Geriatr Soc. 2022 Mar;70(3):718-730. doi: 10.1111/jgs.17699. Epub 2022 Feb 23.