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护理负担:功能性精神疾病对患者家庭的影响。

The burden of care: the impact of functional psychiatric illness on the patient's family.

作者信息

Fadden G, Bebbington P, Kuipers L

机构信息

St Columba's Hospital, Sligo, Eire.

出版信息

Br J Psychiatry. 1987 Mar;150:285-92. doi: 10.1192/bjp.150.3.285.

Abstract

This paper reviews the literature on the effect of severe mental illness on other members of the patient's family. The burdens of caring for a patient at home are considerable. They often affect the caring relative's social and leisure activities, and financial problems arise frequently. Relatives have difficulties in understanding and coming to terms with illness-related behaviour. 'Negative' symptoms are often a particular problem. Despite their burden, relatives do not complain much, although they receive little support, advice or information from the professionals engaged in treating the patient; much is now known about the difficulties relatives face, but we still need to know how they can best be helped. Failure to do this will have bad effects on both relatives and patients.

摘要

本文回顾了关于严重精神疾病对患者家庭其他成员影响的文献。在家照顾患者的负担相当大。这些负担常常影响到照顾亲属的社交和休闲活动,财务问题也经常出现。亲属在理解和接受与疾病相关的行为方面存在困难。“阴性”症状往往是一个特别的问题。尽管负担沉重,但亲属很少抱怨,尽管他们从治疗患者的专业人员那里得到的支持、建议或信息很少;现在我们对亲属面临的困难已经了解很多,但我们仍需要知道如何才能最好地帮助他们。不这样做将对亲属和患者都产生不良影响。

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