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面向移民有尊严的生命终末期的社区教育:一项针对摩洛哥、苏里南和土耳其移民的社区参与式混合方法研究。

Community Education for a Dignified Last Phase of Life for Migrants: A Community Engagement, Mixed Methods Study among Moroccan, Surinamese and Turkish Migrants.

机构信息

Amsterdam UMC, Department of Public & Occupational Health, Amsterdam Public Health Research Institute, University of Amsterdam, Meibergdreef 9, Postbus 22660, 1100 DD Amsterdam, The Netherlands.

Amsterdam UMC, Department of Ethics, Law and Humanities, Amsterdam UMC Expertise Center for Palliative Care and Amsterdam Public Health Research Institute, Meibergdreef 15, 1105 AZ Amsterdam, The Netherlands.

出版信息

Int J Environ Res Public Health. 2020 Oct 24;17(21):7797. doi: 10.3390/ijerph17217797.

Abstract

Community engagement and -education are proposed to foster equity in access to care and to ensure dignity of migrant patients in the last phase of life, but evidence is lacking. We evaluated nine community educational interactive meetings about palliative care (136 participants totally)- co-created with educators from our target groups of Moroccan, Surinamese and Turkish migrants-with a mixed methods approach, including 114 questionnaires, nine observations, nine interviews with educators, and 18 pre- and post- group- and individual interviews with participants. Descriptive and thematic analysis was used. 88% of the participants experienced the meetings as good or excellent. Educators bridged an initial resistance toward talking about this sensitive topic with vivid real-life situations. The added value of the educational meetings were: (1) increased knowledge and awareness about palliative care and its services (2) increased comprehensiveness of participant's wishes and needs regarding dignity in the last phase; (3) sharing experiences for relief and becoming aware of real-life situations. Community engagement and -education about palliative care for migrants effectively increases knowledge about palliative care and is a first step towards improved access to palliative care services, capacity building and a dignified last phase of life among migrants.

摘要

社区参与和教育被提议用来促进获得医疗服务的公平性,并确保移民患者在生命的最后阶段有尊严,但缺乏证据。我们采用混合方法评估了 9 次关于姑息治疗的社区教育互动会议(共有 136 名参与者)-与我们的摩洛哥、苏里南和土耳其移民目标群体的教育工作者共同创建-包括 114 份问卷、9 次观察、9 次与教育工作者的访谈以及 18 次参与者的小组和个人访谈。采用描述性和主题分析。88%的参与者认为会议“好”或“优秀”。教育工作者以生动的现实生活情境,化解了人们对这一敏感话题的最初抵触情绪。教育会议的附加值在于:(1)提高了对姑息治疗及其服务的知识和认识;(2)提高了参与者在生命最后阶段尊严方面的愿望和需求的全面性;(3)分享经验,缓解压力,并意识到现实生活中的情况。针对移民的姑息治疗社区参与和教育有效地提高了对姑息治疗的认识,是改善移民获得姑息治疗服务、能力建设和有尊严的生命最后阶段的第一步。

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How to Talk About Attitudes Toward the End of Life: A Qualitative Study.如何谈论对生命终结的态度:一项定性研究。
Am J Hosp Palliat Care. 2019 Aug;36(8):697-704. doi: 10.1177/1049909119836238. Epub 2019 Mar 14.
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Aging and health among migrants in a European perspective.从欧洲视角看移民中的老龄化与健康问题。
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