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生活变化适应量表的制定:用于后天脑损伤患者的家庭照顾者。

Development of the life change adaptation scale for family caregivers of individuals with acquired brain injury.

机构信息

Department of Community Health Nursing, Graduate School of Medicine, Yokohama City University, Yokohama, Kanagawa, Japan.

出版信息

PLoS One. 2020 Oct 29;15(10):e0241386. doi: 10.1371/journal.pone.0241386. eCollection 2020.

DOI:10.1371/journal.pone.0241386
PMID:33119723
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7595313/
Abstract

AIM

Life changes due to the sudden onset of acquired brain injury (ABI) are drastic personal and social changes that require adaptation and are also an important indicator of the quality of life of family caregivers. However, there are no instruments for evaluating life change adaptation among family caregivers of individuals with acquired brain injury. This study aimed to develop the Life Change Adaptation Scale (LCAS) for family caregivers of individuals with ABI and examine its reliability and validity.

METHODS

A cross-sectional study was conducted using a self-reported questionnaire. A total of 1622 family caregivers of individuals with ABI who belonged to 82 associations for families of individuals with ABI were selected as eligible participants. The construct validity was evaluated using a confirmatory factor analysis. Internal consistency was calculated using Cronbach's alpha. The K6 was also administered to assess the criterion-related validity of the LCAS.

RESULTS

In total, 339 valid responses were received. The confirmatory factor analysis identified eight items from two domains, "Changes in the appraisal of caregiving resources" and "Changes in the health belief as a caregiver" (goodness of fit index = 0.963, adjusted goodness of fit index = 0.926, comparative fit index = 0.986, root mean square error of approximation  = 0.043.) Cronbach's alpha was 0.84. The LCAS was negatively correlated with the K6 (r = -0.504; P<0.001).

CONCLUSIONS

The LCAS is a brief, easy-to-administer instrument that is reliable and valid for family caregivers of individuals with ABI. This study contributes to the assessment and identification by family caregivers of individuals with ABI who require aid in adapting to life changes. Further research should be undertaken to verify the predictive value in a longitudinal study and to attempt to apply the LCAS to assess a broader range of subjects in a wider range of settings.

摘要

目的

获得性脑损伤(ABI)突然发作导致的生活变化是剧烈的个人和社会变化,需要适应,也是家庭照顾者生活质量的重要指标。然而,目前还没有评估获得性脑损伤家庭照顾者生活变化适应的工具。本研究旨在为获得性脑损伤患者的家庭照顾者开发生活变化适应量表(LCAS),并检验其信度和效度。

方法

采用横断面研究,使用自我报告问卷。共选取 82 个获得性脑损伤患者家庭协会的 1622 名获得性脑损伤患者的家庭照顾者作为合格参与者。采用验证性因子分析评估结构效度。采用克朗巴赫 α 系数计算内部一致性。还进行了 K6 测试,以评估 LCAS 的效标关联效度。

结果

共收到 339 份有效回复。验证性因子分析从两个领域确定了 8 个项目,“照顾资源评估的变化”和“作为照顾者的健康信念的变化”(拟合优度指数=0.963,调整拟合优度指数=0.926,比较拟合指数=0.986,近似均方根误差=0.043)。克朗巴赫 α 系数为 0.84。LCAS 与 K6 呈负相关(r=-0.504;P<0.001)。

结论

LCAS 是一种简洁、易于管理的工具,用于评估获得性脑损伤患者的家庭照顾者,具有可靠性和有效性。本研究有助于评估和识别需要帮助适应生活变化的获得性脑损伤患者及其家庭照顾者。应进一步开展研究,以在纵向研究中验证预测值,并尝试在更广泛的范围内应用 LCAS 评估更广泛的受试者。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/adbc/7595313/bdf440305462/pone.0241386.g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/adbc/7595313/bdf440305462/pone.0241386.g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/adbc/7595313/bdf440305462/pone.0241386.g001.jpg

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