Department of Rehabilitation Sciences, The Hong Kong Polytechnic University, Hung Hom, Kowloon, Hong Kong (SAR), China.
Int J Environ Res Public Health. 2020 Mar 10;17(5):1799. doi: 10.3390/ijerph17051799.
Children with autism spectrum disorder (ASD) are reported to participate less in everyday activities, and their parents face stigma on account of having a child with ASD, which they often internalize as affiliate stigma. Studies have examined the impact of affiliate stigma on parents' psychological well-being and social behaviors, but little is known about how affiliate stigma impacts their children's activity participation. This study aimed to investigate the relationship between parents' affiliate stigma and activity participation of their children with ASD. Sixty-three parents of children with ASD (aged 2-6 years) were recruited. They completed questionnaires, which captured affiliate stigma, their child's participation (frequency and involvement) in home, preschool, and community activities, and demographic characteristics. Results indicated that these parents had a moderate level of affiliate stigma, which did not correlate with the frequency of their children's participation in activities. However, the parents' affiliate stigma was found to have negative impacts on their children's involvement in overall community participation and participation in one particular activity at home. The findings highlight the importance of destigmatization of parents of children with ASD in order to promote their children's participation in community activities.
自闭症谱系障碍(ASD)儿童的日常活动参与度较低,其父母因养育 ASD 儿童而面临污名化,他们往往将这种污名内化,即附属污名。已有研究考察了附属污名对父母心理健康和社会行为的影响,但鲜少有人了解附属污名对其子女活动参与度的影响。本研究旨在调查父母附属污名与 ASD 儿童活动参与度之间的关系。研究招募了 63 名 ASD 儿童(2-6 岁)的家长。他们完成了问卷调查,内容包括附属污名、子女在家、学前和社区活动中的参与度(频率和投入度)以及人口统计学特征。结果表明,这些家长的附属污名程度处于中等水平,与子女参与活动的频率无关。然而,父母的附属污名对子女整体社区参与度和在家中参与某项特定活动的投入度均有负面影响。研究结果强调了为 ASD 儿童家长去污名化的重要性,以促进其子女参与社区活动。