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综合视频辅助癫痫教育对癫痫患者药物依从性和自我护理的影响

The Effect of Comprehensive Video-Assisted Epilepsy Education on Drug Adherence and Self-Care in People with Epilepsy.

作者信息

Jothi Arul, Ramamoorthy Lakshmi, Nair Pradeep P

机构信息

College of Nursing, Jawaharlal Institute of Post Graduate Medical Education and Research (JIPMER), Puducherry, India.

College of Nursing, Jawaharlal Institute of Postgraduate Medical Education and Research (JIPMER), Puducherry, India.

出版信息

J Neurosci Rural Pract. 2020 Oct;11(4):538-544. doi: 10.1055/s-0040-1713841. Epub 2020 Jul 2.

Abstract

Epilepsy is a chronic neurological disorder which needs proper drug adherence and follow-up care to control the recurrent seizure events as one of the most common reasons for "breakthrough" seizures is nonadherence to antiepileptic drugs. In addition to usual therapeutic management, patients are encouraged to involve in epilepsy self-management by understanding the nature of the disease and its control measures to prevent the complications.  A single group experimental design (pretest-posttest) was conducted to evaluate the effect of comprehensive video-assisted teaching program on self-care efficacy and level of knowledge of patients with epilepsy. Data was collected by direct interview with Epilepsy Self-Management Scale and epilepsy knowledge questionnaire. A video-assisted teaching covering all aspects of epilepsy was given on the day of pretest. At the interval of 3 months, the level of drug adherence, self-care, and knowledge level were assessed.  Majority of the study participants (47.1%) belonged to the age group between 19 and 30 years, 54.3% participants were male, majority of them (70%) had tonic-clonic seizure, and 40% of them reported the onset of seizures as above 20 years. Eighty-seven percent of participants had no family history of seizures or epilepsy. Note that 38.6% of the participants had at least one seizure episode/month. Majority of the caregivers were either parents (41.4%) or spouse (48.6%). The study revealed that, following video-assisted teaching, the proportion of participants with adequate knowledge has increased from 14 to 64.3%. Similarly, the percentage of participants who had good drug adherence increased from 52 to 65% and no participant had poor drug adherence. Participants who had high level of self-care increased from 71.4 to 88.6%.  To overcome the poor drug adherence-related complications, people with epilepsy are to be personally educated adequately to increase the factual information about the condition and their self-care practices.

摘要

癫痫是一种慢性神经系统疾病,需要适当的药物依从性和后续护理来控制反复发作的癫痫发作事件,因为“突破性”癫痫发作的最常见原因之一是不坚持服用抗癫痫药物。除了常规的治疗管理外,鼓励患者通过了解疾病的性质及其控制措施来参与癫痫自我管理,以预防并发症。

采用单组实验设计(前测-后测)来评估综合视频辅助教学计划对癫痫患者自我护理效能和知识水平的影响。通过直接访谈癫痫自我管理量表和癫痫知识问卷收集数据。在前测当天进行了涵盖癫痫各个方面的视频辅助教学。在3个月的间隔期,评估药物依从性、自我护理水平和知识水平。

大多数研究参与者(47.1%)属于19至30岁年龄组,54.3%的参与者为男性,其中大多数(70%)有强直阵挛发作,40%的参与者报告癫痫发作始于20岁以上。87%的参与者没有癫痫发作或癫痫的家族史。注意,38.6%的参与者每月至少有一次癫痫发作。大多数照顾者是父母(41.4%)或配偶(48.6%)。研究表明,经过视频辅助教学后,知识充足的参与者比例从14%增加到了64.3%。同样,药物依从性良好参与者的百分比从52%增加到了65%,没有参与者药物依从性差。自我护理水平高的参与者从71.4%增加到了88.6%。

为了克服与药物依从性差相关的并发症,癫痫患者需要接受充分的个人教育,以增加有关病情及其自我护理做法的实际信息。

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