Puertas-Porrino N, Fonseca-Hernández E, Quintana-Luque M, Meler-Amella P, Sánchez-López J, Santamarina-Pérez E, Abraira-Del Fresno L, Campos-Fernández D, Lallana-Serrano S, Toledo-Argany M
Hospital Universitario Vall d'Hebron, Barcelona, España.
Rev Neurol. 2023 Nov 1;77(9):215-222. doi: 10.33588/rn.7709.2023146.
In patients with epilepsy health education has a positive influence on self-management of the disease, improves prognosis and enhances patient well-being. The aim of this study was to evaluate an educational intervention using instructional clips in patients with epilepsy in a video-electroencephalographic monitoring unit.
We conducted a randomised clinical trial with two groups (intervention and control). Adult patients with epilepsy admitted to the video-electroencephalographic monitoring unit were recruited. Nine videos about the diagnosis and treatment of epilepsy, together with recommendations on lifestyle, were produced and administered to the intervention group while admitted. Patients' knowledge of their disease was assessed by means of a questionnaire designed specifically for this study. A pre-assessment was conducted at the beginning of the study, at hospital discharge and at three months, and the knowledge of epilepsy in the two groups was compared at each time considered in the study.
Sixty-six patients were included, with a mean age of 39 ± 14.7 years (range: 17-76) and a median of 8 years since disease onset (range: 1-60 years). Fifty-three per cent of the patients were women. Focal epilepsy was the most frequent type (95.5%). The mean score on the pre-intervention test was 57.2 ± 15.3. Patients who received the educational intervention showed better post-test scores at discharge from hospital (81.8 ± 11.2 versus 62.8 ± 13.7; p = 0.001) and at three months (76 ± 9.6 versus 63.2 ± 12.8; p = 0.001).
The EPICAP educational intervention using instructional clips significantly improves patients' knowledge of epilepsy-related diagnostic, therapeutic and lifestyle issues.
在癫痫患者中,健康教育对疾病的自我管理有积极影响,可改善预后并提高患者幸福感。本研究的目的是评估在视频脑电图监测病房中,使用教学视频片段对癫痫患者进行教育干预的效果。
我们进行了一项两组(干预组和对照组)的随机临床试验。招募入住视频脑电图监测病房的成年癫痫患者。制作了9个关于癫痫诊断和治疗以及生活方式建议的视频,并在患者住院期间播放给干预组。通过专门为本研究设计的问卷评估患者对自身疾病的了解情况。在研究开始时、出院时和三个月时进行预评估,并在研究考虑的每个时间点比较两组患者对癫痫的了解情况。
共纳入66例患者,平均年龄为39±14.7岁(范围:17 - 76岁),自疾病发作以来的中位数为8年(范围:1 - 60年)。53%的患者为女性。局灶性癫痫是最常见的类型(95.5%)。干预前测试的平均得分为57.2±15.3。接受教育干预的患者在出院时(81.8±11.2对62.8±13.7;p = 0.001)和三个月时(76±9.6对63.2±12.8;p = 0.001)的测试后得分更高。
使用教学视频片段的EPICAP教育干预显著提高了患者对癫痫相关诊断、治疗和生活方式问题的了解。