Rheumatology Department, Concord Repatriation General Hospital, Sydney, NSW, Australia.
Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.
Int J Rheum Dis. 2021 Jan;24(1):28-35. doi: 10.1111/1756-185X.14014. Epub 2020 Nov 5.
While patient-centered care is widely advocated in the management of rheumatic diseases, it can be challenging to implement, particularly for patients with complex systemic conditions. Patient-centered care involves identifying and integrating the patient's experiences, attitudes, and preferences in decision-making. Qualitative research is used to describe patient perspectives and priorities that may not always be expressed in clinical settings. Systematic reviews of qualitative studies can provide new and more comprehensive evidence of patients' beliefs and priorities across different populations and healthcare settings and are increasingly being reported across medical specialties, including rheumatology. In rheumatology, they have been used to examine topics including medication-taking and adherence, coping with systemic sclerosis and conservative management and exercise in osteoarthritis. By referencing recent examples of systematic qualitative reviews in the rheumatology literature, this article will outline the methodology and methods used, and provide an approach to guide the appraisal of reviews. We aim to give the reader a practical understanding of systematic reviews of qualitative literature and elucidate how knowledge gained from such reviews can be applied to improve the care of patients with rheumatic conditions.
虽然以患者为中心的护理在风湿性疾病的管理中得到广泛提倡，但在实践中可能具有挑战性，特别是对于患有复杂系统性疾病的患者。以患者为中心的护理包括识别和整合患者在决策中的体验、态度和偏好。定性研究用于描述患者的观点和优先事项，这些观点和优先事项在临床环境中并不总是表达出来。对定性研究的系统评价可以提供关于不同人群和医疗保健环境中患者信念和优先事项的新的、更全面的证据，并且越来越多地在包括风湿病学在内的各个医学专业中得到报告。在风湿病学中，它们已被用于研究药物治疗和依从性、系统性硬皮病的应对、保守治疗和骨关节炎的运动等主题。通过参考风湿病学文献中最近的系统定性综述实例，本文将概述所使用的方法和方法，并提供一种方法来指导综述的评价。我们的目的是让读者对定性文献的系统综述有一个实际的了解，并阐明从此类综述中获得的知识如何应用于改善风湿性疾病患者的护理。
