A. Kelly, MBBS, FRACP, College of Health and Medicine, Australian National University, Canberra, and Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, and Canberra Rheumatology, Canberra, and Department of Rheumatology, The Canberra Hospital, Canberra, Australia;
K. Tymms, MBBS, FRACP, College of Health and Medicine, Australian National University, and Canberra Rheumatology, and Department of Rheumatology, The Canberra Hospital, Canberra, Australia.
J Rheumatol. 2021 Jan 1;48(1):6-15. doi: 10.3899/jrheum.191368. Epub 2020 Jul 15.
Patient-centered care is widely advocated in rheumatology. This involves collaboration among patients, caregivers, and health professionals and is particularly important in chronic rheumatic conditions because the disease and treatment can impair patients' health and well-being. Qualitative research can systematically generate insights about people's experiences, beliefs, and attitudes, which patients may not always express in clinical settings. These insights can address complex and challenging areas in rheumatology, such as treatment adherence and transition to adult healthcare services. Despite this, qualitative research comprises 1% of studies published in top-tier rheumatology journals. A better understanding about the effect and role, methods, and rigor of qualitative research is needed. This overview highlights the recent contributions of qualitative research in rheumatology, summarizes the common approaches and methods used, and outlines the key principles to guide appraisal of qualitative studies.
患者为中心的护理在风湿病学中被广泛提倡。这涉及到患者、护理人员和卫生专业人员之间的协作，在慢性风湿性疾病中尤为重要，因为疾病和治疗会损害患者的健康和福祉。定性研究可以系统地产生关于人们的经验、信仰和态度的见解，而这些见解可能并不总是在临床环境中表达出来。这些见解可以解决风湿病学中复杂和具有挑战性的领域，例如治疗依从性和向成人保健服务的过渡。尽管如此，定性研究在顶级风湿病学期刊发表的研究中仅占 1%。需要更好地了解定性研究的效果和作用、方法和严谨性。这篇综述强调了定性研究在风湿病学中的最新贡献，总结了常用的方法和途径，并概述了指导定性研究评价的关键原则。
