Burman Mary E
Fay W. Whitney School of Nursing, University of Wyoming, Laramie, Wyoming
Ann Fam Med. 2020 Nov;18(6):555-557. doi: 10.1370/afm.2588.
I have been a nurse for 40 years and I now have metastatic breast cancer. I have learned a lot, especially about giving bad news, disclosing the diagnosis to others, and using the hospital's patient portal. First, how bad news is given to patients is important and should provide clear next steps for follow-up and treatment. Second, telling family, friends, and colleagues about a new cancer diagnosis is more challenging than you might expect. It is emotionally draining and time consuming, and support by primary care clinicians (PCCs) could make a difference. Finally, patient portals can be very beneficial, but their use in a complex diagnostic process like metastatic cancer can be problematic. Primary care clinicians should explicitly discuss use of portals with patients so that they receive the information they need in the way they want.
我从事护士工作已40年，现在患有转移性乳腺癌。我学到了很多东西，尤其是在传达坏消息、向他人透露诊断结果以及使用医院的患者门户网站方面。首先，如何向患者传达坏消息很重要，应该为后续跟进和治疗提供明确的下一步措施。其次，告诉家人、朋友和同事自己新的癌症诊断比你想象的更具挑战性。这在情感上让人精疲力竭且耗费时间，而初级保健临床医生（PCCs）的支持可能会起到作用。最后，患者门户网站可能非常有益，但在像转移性癌症这样复杂的诊断过程中使用它们可能会出现问题。初级保健临床医生应该与患者明确讨论门户网站的使用，以便他们以自己希望的方式获得所需信息。
