Taranrød Liv Bjerknes, Eriksen Siren, Pedersen Ingeborg, Kirkevold Øyvind
Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway.
University of Oslo, Faculty of Medicine, Oslo, Norway.
J Multidiscip Healthc. 2020 Nov 2;13:1363-1373. doi: 10.2147/JMDH.S268818. eCollection 2020.
Caring for people with dementia is often associated with burden of care and may influence the quality of life of the next of kin. The aim of this study was to describe the characteristics of the next of kin to people with dementia attending farm-based day care service (FDC) and identify characteristics associated with burden of care and quality of life (QoL) of next of kin.
Ninety-four dyads of people with dementia and their next of kin were included from 25 FDCs in Norway in this descriptive cross-sectional study. The Relative Stress Scale (RSS) and the QoL-Alzheimer's Disease Scale (QoL-AD) were used as outcomes measures.
The participants consisted of those who lived with a person with dementia (spouse/partner, 62%) and those who did not (children), with significant differences in age, education level, work employment, perceived social support, depression symptoms, burden of care, and QoL. In multiple regression models, RSS and QoL were associated with living with the person with dementia, anxiety symptoms and perceived social support. In addition, RSS was associated with neuropsychiatric symptoms (NPS) in the people with dementia.
Our findings underline the importance of obtaining knowledge about the next of kin's burden of care and QoL, of people with dementia attending an FDC. This knowledge is essential for those responsible for providing the best possible services for the next of kin and for developing targeted interventions to support the next of kin.
照顾痴呆症患者通常与护理负担相关，且可能影响其近亲的生活质量。本研究旨在描述参加农场日间护理服务（FDC）的痴呆症患者近亲的特征，并确定与近亲护理负担和生活质量（QoL）相关的特征。
在这项描述性横断面研究中，从挪威的25个FDC中纳入了94对痴呆症患者及其近亲。使用相对压力量表（RSS）和阿尔茨海默病生活质量量表（QoL-AD）作为结局指标。
参与者包括与痴呆症患者共同生活的人（配偶/伴侣，62%）和不与患者共同生活的人（子女），他们在年龄、教育水平、工作、感知到的社会支持、抑郁症状、护理负担和生活质量方面存在显著差异。在多元回归模型中，RSS和QoL与与痴呆症患者共同生活、焦虑症状和感知到的社会支持相关。此外，RSS与痴呆症患者的神经精神症状（NPS）相关。
我们的研究结果强调了了解参加FDC的痴呆症患者近亲护理负担和生活质量的重要性。这些知识对于那些负责为近亲提供最佳服务以及制定有针对性的干预措施以支持近亲的人来说至关重要。
