从以农场为基础的日托中心到养老院的过渡：家属的观点。
The transition of care from farm-based daycare for people with dementia: The perspective of next of kin.
机构信息
Norwegian National Centre for Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway.
Faculty of Medicine, University of Oslo, Oslo, Norway.
出版信息
Int J Qual Stud Health Well-being. 2023 Dec;18(1):2228047. doi: 10.1080/17482631.2023.2228047. Epub 2023 Jun 23.
PURPOSE
The aim of the present study was to explore the next of kin's experiences with the transition for people with dementia from a farm-based daycare (FDC) to another service in the municipality.
METHODS
The study has a qualitative, descriptive design. Eight semi-structured interviews with next of kin were conducted. The data were analysed in accordance with content analysis.
RESULTS
Through the analysis three main categories were developed: (1) Bearing the burden, (2) Being in transition, and (3) Feeling supported. The transition period was highly stressful for next of kin due to the exacerbation of their relatives' dementia symptoms. The next of kin focussed on optimizing the everyday lives of their relatives with dementia, even at the expense of their own well-being. Most participants experienced support from FDC, healthcare services and their informal network.
CONCLUSIONS
The study contributes important insights into the next of kin's experiences. Good quality service, close dialog, information, and support between the different part in the transition process, can be useful for the further development of services with good quality and to reduce the negative effects of care on next of kin.
目的
本研究旨在探讨从农场日托（FDC）向市立其他服务机构转移的痴呆症患者的亲属的体验。
方法
本研究采用定性描述设计。对 8 名亲属进行了半结构化访谈。根据内容分析法对数据进行了分析。
结果
通过分析，得出了三个主要类别：（1）承受负担，（2）过渡时期，（3）感到支持。由于亲属的痴呆症症状恶化，过渡时期对亲属来说压力很大。亲属专注于优化痴呆症亲属的日常生活，甚至不惜牺牲自己的福祉。大多数参与者都得到了 FDC、医疗保健服务和他们的非正式网络的支持。
结论
本研究为亲属的体验提供了重要的见解。在过渡过程的不同部分之间提供优质服务、密切对话、信息和支持，可以有助于进一步发展高质量的服务，并减轻护理对亲属的负面影响。
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