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《时间的政治学:邻里环境中的痴呆症、护理和支持》

Taking time: The temporal politics of dementia, care and support in the neighbourhood.

机构信息

Faculty of Social Sciences, University of Stirling, Stirling, Scotland.

School of Health Sciences, Jonkoping University, Jonkoping, Sweden.

出版信息

Sociol Health Illn. 2022 Nov;44(9):1427-1444. doi: 10.1111/1467-9566.13524. Epub 2022 Sep 5.

Abstract

Dementia is a global health challenge and currently the focus of a coordinated international response articulated through the notion of 'dementia-friendly communities and initiatives' (DFCIs). Yet, while increasing research attention has been paid to the social and spatial dimensions to life with dementia in a neighbourhood setting, the temporalities of dementia have been largely overlooked. This article sets out different aspects of the lived experience of time for people with dementia and unpaid carers, before exploring the temporal politics of formal dementia care and support. The authors show that time is a site for material struggle and a marker of unequal relations of power. People with dementia and unpaid carers are disempowered through access to formal care, and this is illustrated in their loss of (temporal) autonomy and limited options for changing the conditions of the care received. The authors advocate for a time-space configured understanding of the relationship with neighbourhood and foreground a tempo-material understanding of dementia. Set against the backdrop of austerity policy in the UK, the findings reveal that ongoing budgetary restrictions have diminished the capacity for social care to mediate in questions of social justice and inequality, at times even compounding inequity.

摘要

痴呆症是一个全球性的健康挑战,目前正在通过“痴呆症友好社区和倡议”(DFCIs)的概念进行协调一致的国际应对。然而,尽管越来越多的研究关注到在邻里环境中与痴呆症相关的社会和空间维度,但对痴呆症的时间性却在很大程度上被忽视了。本文阐述了痴呆症患者和无薪照顾者的生活体验的不同方面,然后探讨了正式的痴呆症护理和支持的时间政治。作者表明,时间是物质斗争的场所,也是权力不平等关系的标志。痴呆症患者和无薪照顾者通过获得正式护理而失去权力,这体现在他们丧失(时间)自主权和改变所接受护理条件的选择有限。作者倡导从时-空配置的角度理解与邻里的关系,并强调对痴呆症的时间-物质理解。在英国紧缩政策的背景下,这些发现表明,持续的预算限制削弱了社会护理在社会公正和不平等问题上进行调解的能力,有时甚至加剧了不平等。

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Neighbourhoods as relational places for people living with dementia.邻里关系对痴呆症患者的重要性。
Soc Sci Med. 2020 May;252:112927. doi: 10.1016/j.socscimed.2020.112927. Epub 2020 Mar 17.

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