• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

小儿心脏移植:生活质量

Pediatric heart transplantation: quality of life.

作者信息

Lawrence K S, Fricker F J

机构信息

Children's Hospital of Pittsburgh, PA 15213.

出版信息

J Heart Transplant. 1987 Nov-Dec;6(6):329-33.

PMID:3320303
Abstract

Staff members at the University of Pittsburgh have performed pediatric heart transplantations since 1982. As heart transplantation becomes an accepted therapeutic treatment, more children undergo surgery and return home. Assessment of the quality of life after transplantation of these children is essential. This article describes the life-styles of seven surviving transplant patients. The children lived for periods ranging from 3 months to 3 years. Patients were evaluated psychosocially by the Personality Inventory for Children, Offer Self-Image Questionnaire, Eyberg Child Behavior Inventory, and projective drawings. Daily routines and school achievement were assessed by interviews with the parents. Cardiovascular function was measured by exercise testing. When possible, comparisons were made with the patient's preoperative status. Heart transplantation assaults the body, both physically and emotionally. This study concludes that the surviving children can adapt to the experience. Heart transplantation enables them to return to a level of functioning that is appropriate for age. However, speculation is made whether the benefits gained for a child who undergoes transplantation can be sustained long enough to warrant such extensive treatment.

摘要

自1982年以来,匹兹堡大学的工作人员就开展了小儿心脏移植手术。随着心脏移植成为一种被认可的治疗方法,越来越多的儿童接受了手术并返回家中。评估这些儿童移植后的生活质量至关重要。本文描述了七名存活的移植患者的生活方式。这些儿童存活的时间从3个月到3年不等。通过儿童个性量表、奥弗自我形象问卷、艾伯格儿童行为量表和投射画对患者进行心理社会评估。通过与家长访谈来评估日常活动和学业成绩。通过运动测试来测量心血管功能。在可能的情况下,将患者与术前状态进行比较。心脏移植对身体和情感都会造成冲击。本研究得出结论,存活下来的儿童能够适应这种经历。心脏移植使他们能够恢复到适合其年龄的功能水平。然而,有人推测,接受移植的儿童所获得的益处是否能够持续足够长的时间,以证明这种广泛的治疗是合理的。

相似文献

1
Pediatric heart transplantation: quality of life.小儿心脏移植:生活质量
J Heart Transplant. 1987 Nov-Dec;6(6):329-33.
2
Cost-effectiveness of pediatric heart transplantation.小儿心脏移植的成本效益
J Heart Lung Transplant. 2006 Apr;25(4):409-15. doi: 10.1016/j.healun.2005.11.443. Epub 2006 Feb 8.
3
Prospective evaluation of health related quality of life for pediatric patients with ureteropelvic junction obstruction.小儿肾盂输尿管连接部梗阻患者健康相关生活质量的前瞻性评估。
J Urol. 2008 Nov;180(5):2171-5; discussion 2175-6. doi: 10.1016/j.juro.2008.07.064. Epub 2008 Sep 20.
4
The longitudinal impact of psychological functioning, medical severity, and family functioning in pediatric heart transplantation.儿童心脏移植中心理功能、医学严重程度和家庭功能的纵向影响
J Heart Lung Transplant. 2004 Apr;23(4):473-80. doi: 10.1016/S1053-2498(03)00215-8.
5
Improvement in quality of life in patients with heart failure who undergo transplantation.接受移植的心力衰竭患者生活质量的改善。
J Heart Lung Transplant. 1996 Aug;15(8):749-57.
6
Changes in health-related quality of life and depression in heart transplant recipients.心脏移植受者健康相关生活质量和抑郁状况的变化。
J Heart Lung Transplant. 1995 Mar-Apr;14(2):373-81.
7
Family pediatrics: report of the Task Force on the Family.家庭儿科学:家庭问题特别工作组报告
Pediatrics. 2003 Jun;111(6 Pt 2):1541-71.
8
Assessing exercise performance after heart transplantation.评估心脏移植后的运动表现。
Clin Transplant. 2007 May-Jun;21(3):398-404. doi: 10.1111/j.1399-0012.2007.00658.x.
9
Quality of life in children with heart disease as perceived by children and parents.儿童和家长所感知的心脏病患儿的生活质量。
Pediatrics. 2008 May;121(5):e1060-7. doi: 10.1542/peds.2006-3778.
10
Beyond the first year after pediatric heart or heart-lung transplantation: Changes in cognitive function and behaviour.小儿心脏或心肺移植术后一年以后:认知功能和行为的变化
Pediatr Transplant. 2005 Apr;9(2):170-7. doi: 10.1111/j.1399-3046.2005.00265.x.

引用本文的文献

1
Self-reported engagement in everyday activities following bilateral lung transplantation in paediatric cystic fibrosis: a single centre study.小儿囊性纤维化患者行双侧肺移植术后日常活动的自我报告参与情况:单中心研究。
BMJ Paediatr Open. 2023 Dec 20;7(1):e002251. doi: 10.1136/bmjpo-2023-002251.
2
Current status of psychological research in organ transplantation.器官移植心理研究的现状
J Clin Psychol Med Settings. 1994 Mar;1(1):41-70. doi: 10.1007/BF01991724.
3
Psychosocial implications during adolescence for infant heart transplant recipients.
青少年时期婴儿心脏移植受者的心理社会影响。
Curr Cardiol Rev. 2011 May;7(2):123-34. doi: 10.2174/157340311797484277.
4
Comparing parents' and children's views of children's quality of life after heart transplant.比较父母与子女对心脏移植后子女生活质量的看法。
J Spec Pediatr Nurs. 2009 Jan;14(1):49-58. doi: 10.1111/j.1744-6155.2008.00173.x.
5
In my shoes: children's quality of life after heart transplantation.设身处地:儿童心脏移植后的生活质量
Prog Transplant. 2007 Sep;17(3):199-207; quiz 208. doi: 10.1177/152692480701700307.
6
Cognitive function and behavioural status in paediatric heart and heart-lung transplant recipients: the Harefield experience.儿童心脏和心肺移植受者的认知功能与行为状态:哈雷菲尔德医院的经验
BMJ. 1994 Oct 1;309(6958):837-41. doi: 10.1136/bmj.309.6958.837.
7
The influence of long-term morbidity on health status and rehabilitation following paediatric organ transplantation.长期发病情况对小儿器官移植后健康状况及康复的影响。
Eur J Pediatr. 1992;151 Suppl 1:S70-5. doi: 10.1007/BF02125807.
8
Effect of cardiac or heart-lung transplantation on the quality of life of the paediatric patient.心脏或心肺移植对小儿患者生活质量的影响。
Qual Life Res. 1992 Feb;1(1):41-6. doi: 10.1007/BF00435434.