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社交媒体在精神健康研究中的伦理与隐私问题

Ethics and Privacy in Social Media Research for Mental Health.

机构信息

Orygen, Parkville, Victoria, Australia.

Centre for Youth Mental Health, The University of Melbourne, Parkville, Victoria, Australia.

出版信息

Curr Psychiatry Rep. 2020 Nov 23;22(12):84. doi: 10.1007/s11920-020-01205-9.

DOI:10.1007/s11920-020-01205-9
PMID:33225404
Abstract

PURPOSE OF REVIEW

This review provides an overview of recent research which uses social media data in the context of mental health. It also provides an overview of challenges in relation to consent, privacy, and usage of such data.

RECENT FINDINGS

A broad range of research has been conducted in recent years, using text-based and visual data from social media platforms, for purposes such as risk detection at the individual level, providing crisis outreach, and developing a better understanding of the lived experience of mental ill-health. Challenges remain in relation to obtaining truly informed consent for research using social media data-however platforms allowing data donation may address these concerns. There is an imperative need to ensure that privacy is preserved at all stages of the research process, from data collection, to analysis, and the responsible use of raw data in publications.

摘要

目的综述

本综述概述了近年来利用社交媒体数据研究心理健康问题的研究进展,同时还介绍了与同意、隐私和使用此类数据相关的挑战。

最近的发现

近年来,人们已经利用社交媒体平台的文本和视觉数据进行了广泛的研究,旨在实现个体风险检测、提供危机干预以及更深入了解精神健康不良的实际体验等目标。然而,在使用社交媒体数据进行研究时,如何真正获得知情同意仍然存在挑战——允许数据捐赠的平台可能会解决这些问题。从数据收集到分析,再到在出版物中负责任地使用原始数据,都必须在研究过程的各个阶段保护隐私。

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