• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

利用社交媒体进行临床研究:布朗-寿命中心数字健康的建议和范例。

Using Social Media for Clinical Research: Recommendations and Examples From the Brown-Lifespan Center for Digital Health.

机构信息

Department of Emergency Medicine, Warren Alpert Medical School of Brown University, Providence, RI, United States.

Department of Health Services, Policy & Practice, Brown University School of Public Health, Providence, RI, United States.

出版信息

J Med Internet Res. 2022 Jun 13;24(6):e35804. doi: 10.2196/35804.

DOI:10.2196/35804
PMID:35700012
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9237766/
Abstract

Social media integration into research has increased, and 92% of American social media participants state they would share their data with researchers. Yet, the potential of these data to transform health outcomes has not been fully realized, and the way clinical research is performed has been held back. The use of these technologies in research is dependent on the investigators' awareness of their potential and their ability to innovate within regulatory and institutional guidelines. The Brown-Lifespan Center for Digital Health has launched an initiative to address these challenges and provide a helpful framework to expand social media use in clinical research.

摘要

社交媒体已经融入了研究领域,92%的美国社交媒体参与者表示他们愿意与研究人员分享自己的数据。然而,这些数据在改善健康结果方面的潜力尚未得到充分实现,临床研究的开展也受到了阻碍。这些技术在研究中的应用取决于研究人员对其潜力的认识,以及他们在监管和机构指南框架内创新的能力。布朗-寿命中心数字健康部门发起了一项倡议,旨在解决这些挑战,并提供一个有用的框架来扩大社交媒体在临床研究中的使用。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/04e3/9237766/7176d27b7772/jmir_v24i6e35804_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/04e3/9237766/8c3d39ac3f2a/jmir_v24i6e35804_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/04e3/9237766/7176d27b7772/jmir_v24i6e35804_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/04e3/9237766/8c3d39ac3f2a/jmir_v24i6e35804_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/04e3/9237766/7176d27b7772/jmir_v24i6e35804_fig2.jpg

相似文献

1
Using Social Media for Clinical Research: Recommendations and Examples From the Brown-Lifespan Center for Digital Health.利用社交媒体进行临床研究:布朗-寿命中心数字健康的建议和范例。
J Med Internet Res. 2022 Jun 13;24(6):e35804. doi: 10.2196/35804.
2
Public Concern About Monitoring Twitter Users and Their Conversations to Recruit for Clinical Trials: Survey Study.公众对监测推特用户及其对话以招募临床试验参与者的关注:调查研究
J Med Internet Res. 2019 Oct 30;21(10):e15455. doi: 10.2196/15455.
3
Social Media Programs for Outreach and Recruitment Supporting Aging and Alzheimer Disease and Related Dementias Research: Longitudinal Descriptive Study.社交媒体项目在老龄化和阿尔茨海默病及相关痴呆症研究中的推广和招募作用:纵向描述性研究。
JMIR Aging. 2024 Jul 9;7:e51520. doi: 10.2196/51520.
4
Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment.利用互联网和社交媒体招募健康研究参与者的伦理与隐私问题:在线招募的设计即隐私框架
J Med Internet Res. 2017 Apr 6;19(4):e104. doi: 10.2196/jmir.7029.
5
Practical guidance: the use of social media in oncology practice.实用指南:社交媒体在肿瘤学实践中的应用。
J Oncol Pract. 2012 Sep;8(5):e114-24. doi: 10.1200/JOP.2012.000610. Epub 2012 Jul 17.
6
Recruiting U.S. and Canadian college students via social media for participation in a web-based brief intervention study.通过社交媒体招募美国和加拿大的大学生参与一项基于网络的简短干预研究。
J Stud Alcohol Drugs. 2015 Jan;76(1):127-32.
7
Ethical and Regulatory Considerations for Using Social Media Platforms to Locate and Track Research Participants.社交媒体平台用于寻找和跟踪研究参与者的伦理和监管考虑因素。
Am J Bioeth. 2019 Jun;19(6):47-61. doi: 10.1080/15265161.2019.1602176.
8
Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community.数字侵权:研究人员从在线患者社区获取数据时的伦理及使用条款违规行为
J Med Internet Res. 2019 Feb 21;21(2):e11985. doi: 10.2196/11985.
9
The Impact of Social Media on Dissemination and Implementation of Clinical Practice Guidelines: A Longitudinal Observational Study.社交媒体对临床实践指南传播与实施的影响:一项纵向观察研究。
J Med Internet Res. 2015 Aug 13;17(8):e193. doi: 10.2196/jmir.4414.
10
The #SeePainMoreClearly Phase II Pain in Dementia Social Media Campaign: Implementation and Evaluation Study.# 看清疼痛更清晰:痴呆症社交媒体宣传活动第二阶段:实施与评估研究。
JMIR Aging. 2024 Feb 8;7:e53025. doi: 10.2196/53025.

引用本文的文献

1
Multilevel and multimodal biobehavioral methods in the study of stress, trauma, and resilience: a systems approach.压力、创伤与复原力研究中的多层次多模态生物行为方法:一种系统方法
J Neural Transm (Vienna). 2025 Jun 9. doi: 10.1007/s00702-025-02962-8.
2
Navigating the Modern Landscape of Social Media: Ethical Considerations for Research With Adolescents and Young Adults.探索社交媒体的现代格局:针对青少年和青年进行研究的伦理考量
Transl Issues Psychol Sci. 2024 Jun;10(2):123-134. doi: 10.1037/tps0000408.
3
How to make cardiology clinical trials more inclusive.

本文引用的文献

1
MyCOVIDRisk app: development and utilisation of a COVID-19 risk assessment and mitigation application.我的新冠风险应用程序:一款新冠病毒风险评估与缓解应用程序的开发与应用
BMJ Innov. 2021 Apr 19;7(2):363-367. doi: 10.1136/bmjinnov-2021-000672. Epub 2021 Mar 30.
2
Going Viral: Researching Safely on Social Media.病毒式传播:在社交媒体上安全研究。
J Med Internet Res. 2021 Dec 13;23(12):e29737. doi: 10.2196/29737.
3
Engaging Institutional Stakeholders to Develop and Implement Guidelines for Recruiting Participants in Research Studies Using Social Media: Mixed Methods, Multi-Phase Process.
如何使心脏病学临床试验更具包容性。
Nat Med. 2024 Oct;30(10):2745-2755. doi: 10.1038/s41591-024-03273-3. Epub 2024 Oct 14.
4
Educator's blueprint: Key considerations for using social media in survey-based medical education research.教育者蓝图:基于调查的医学教育研究中使用社交媒体的关键考量因素
AEM Educ Train. 2024 Sep 23;8(5):e11026. doi: 10.1002/aet2.11026. eCollection 2024 Oct.
5
Associations Between Patient-Reported Outcome Measures of Physical and Psychological Functioning and Willingness to Share Social Media Data for Research Among Adolescents With a Chronic Rheumatic Disease: Cross-Sectional Survey.慢性风湿性疾病青少年患者报告的身体和心理功能结局测量与愿意分享社交媒体数据用于研究之间的关联:横断面调查
JMIR Pediatr Parent. 2023 Dec 6;6:e46555. doi: 10.2196/46555.
利用社交媒体招募研究参与者的指南制定与实施:混合方法、多阶段过程中的机构利益相关者参与。
J Med Internet Res. 2021 Oct 8;23(10):e23312. doi: 10.2196/23312.
4
Inclusion of older adults in emergency department clinical research: Strategies to achieve a critical goal.将老年人纳入急诊科临床研究:实现关键目标的策略。
Acad Emerg Med. 2022 Mar;29(3):376-383. doi: 10.1111/acem.14386. Epub 2021 Sep 28.
5
A Cyberbullying Media-Based Prevention Intervention for Adolescents on Instagram: Pilot Randomized Controlled Trial.一项针对青少年在照片墙(Instagram)上基于网络欺凌媒体的预防干预措施:试点随机对照试验。
JMIR Ment Health. 2021 Sep 15;8(9):e26029. doi: 10.2196/26029.
6
#PuertoRicoSeLevanta: A Closer Look at the Language Used on the First-Year Anniversary of Hurricane Maria.# 波多黎各奋起:深入审视玛丽亚飓风一周年纪念活动中使用的语言
J Technol Behav Sci. 2021 Jun;6(2):358-364. doi: 10.1007/s41347-020-00167-2. Epub 2020 Sep 12.
7
Telehealth was beneficial during COVID-19 for older Americans: A qualitative study with physicians.远程医疗在 COVID-19 期间对美国老年人有益:一项对医生的定性研究。
J Am Geriatr Soc. 2021 Nov;69(11):3034-3043. doi: 10.1111/jgs.17370. Epub 2021 Jul 20.
8
Feasibility and Cost of Using Instagram to Recruit Adolescents to a Remote Intervention.使用 Instagram 招募青少年参与远程干预的可行性和成本。
J Adolesc Health. 2021 Nov;69(5):838-846. doi: 10.1016/j.jadohealth.2021.04.021. Epub 2021 May 29.
9
Ethics and Privacy in Social Media Research for Mental Health.社交媒体在精神健康研究中的伦理与隐私问题
Curr Psychiatry Rep. 2020 Nov 23;22(12):84. doi: 10.1007/s11920-020-01205-9.
10
Ethical Considerations in HIV eHealth Intervention Research: Implications for Informational Risk in Recruitment, Data Maintenance, and Consent Procedures.艾滋病毒电子健康干预研究中的伦理问题:对招募、数据维护和同意程序中的信息风险的影响。
Curr HIV/AIDS Rep. 2020 Jun;17(3):180-189. doi: 10.1007/s11904-020-00489-z.