Delgado Jaime, Llorente Silvia
Information Modeling and Processing (IMP) group - DMAG, Computer Architecture Dept. (DAC), Universitat Politècnica de Catalunya (UPC BarcelonaTECH).
Stud Health Technol Inform. 2020 Nov 23;275:37-41. doi: 10.3233/SHTI200690.
Making data Findable, Accessible, Interoperable and Reusable (FAIR) is a good approach when data needs to be shared. However, security and privacy are still critical aspects. In the FAIRification process, there is a need both for de-identification of data and for license attribution. The paper analyses some of the issues related to this process when the objective is sharing genomic information. The main results are the identification of the already existing standards that could be used for this purpose and how to combine them. Nevertheless, the area is quickly evolving and more specific standards could be specified.
当需要共享数据时，使数据具备可查找、可访问、可互操作和可重用（FAIR）特性是一种不错的方法。然而，安全和隐私仍然是关键方面。在实现FAIR化的过程中，既需要对数据进行去标识化处理，也需要进行许可归属。本文分析了在以共享基因组信息为目标时，与该过程相关的一些问题。主要成果是确定了可用于此目的的现有标准以及如何将它们结合起来。尽管如此，该领域发展迅速，可能会制定出更具体的标准。
