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《海湾战争疾病的困扰:海湾战争提供者的观点》

Grappling with Gulf War Illness: Perspectives of Gulf War Providers.

机构信息

Creative Arts Therapy Department, Drexel University, Philadelphia, PA 19102, USA.

出版信息

Int J Environ Res Public Health. 2020 Nov 19;17(22):8574. doi: 10.3390/ijerph17228574.

Abstract

: Although the Gulf War occurred almost 30 years ago, the chronic symptoms of Gulf War illness (GWI), which include respiratory, gastrointestinal, and skin problems, as well as fatigue, pain, and mood alterations, currently affect over 200,000 veterans. Meanwhile, healthcare providers lack clear guidelines about how to best treat this illness. The objective in this study was to learn about the perceptions and experiences of healthcare providers of GWI veterans in terms of medical symptoms, resources for treatment, and quality of care. : We interviewed 10 healthcare providers across the United States and subsequently conducted a qualitative grounded theory study which entailed both systematic data analysis and generating a grounded theory framework. : Our findings indicated multiple challenges for providers of veterans with GWI, including gaps in knowledge about GWI, lack of treatment options, absence of consistent communication within the Department of Veterans Affairs (VA) system, and personalized care that was limited to validation. : While this study had several limitations, it supported the notion that healthcare providers have inadequate knowledge and awareness about GWI, which leads to continued uncertainty about how to best care for GWI veterans. This could be remedied by the creation of a comprehensive curriculum for a Massive Open Online Course (MOOC) to serve as an educational tool for those attending to this largely overlooked veteran population.

摘要

虽然海湾战争已经过去了近 30 年,但海湾战争后长期综合征(GWI)的慢性症状仍在困扰着超过 20 万的退伍军人,这些症状包括呼吸道、胃肠道和皮肤问题,以及疲劳、疼痛和情绪改变等。与此同时,医疗保健提供者缺乏关于如何最好地治疗这种疾病的明确指导方针。本研究的目的是了解医疗保健提供者对海湾战争退伍军人的医疗症状、治疗资源和护理质量的看法和经验。

我们在美国各地采访了 10 名医疗保健提供者,随后进行了一项定性扎根理论研究,该研究包括系统数据分析和生成扎根理论框架。

我们的研究结果表明,海湾战争退伍军人的医疗保健提供者面临多种挑战,包括对海湾战争后综合征的知识空白、缺乏治疗选择、退伍军人事务部(VA)系统内缺乏一致的沟通,以及仅限于验证的个性化护理。

虽然这项研究存在一些局限性,但它支持了这样一种观点,即医疗保健提供者对海湾战争后综合征的了解和认识不足,这导致他们对如何最好地照顾海湾战争退伍军人仍存在持续的不确定性。这可以通过创建一个大规模开放在线课程(MOOC)的综合课程来解决,作为一个教育工具,为那些关注这个被忽视的退伍军人群体的人提供服务。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2f06/7699279/89daae788bc9/ijerph-17-08574-g001.jpg

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