Department of Gastroenterology, Henri Mondor Hospital, Paris Est-Créteil Val de Marne University, Creteil, France.
Department of Gastroenterology, CHU Lille, Service des Maladies de l'appareil digestif, Lille, France.
J Crohns Colitis. 2021 May 4;15(5):766-773. doi: 10.1093/ecco-jcc/jjaa244.
The inflammatory bowel disease [IBD]-disk is a 10-item self-questionnaire that is used to assess IBD-related disability. The aim of the present study was to evaluate this tool in the assessment of IBD daily-life burden.
A 1-week cross-sectional study was conducted in 42 centres affiliated in France and Belgium. Patients were asked to complete the IBD-disk [best score: 0, worst score: 100] and a visual analogue scale [VAS] of IBD daily-life burden [best score: 0, worst score: 10]. Analyses included internal consistency, correlation analysis, and diagnostic performance assessment.
Among the 2011 IBD outpatients who responded to the survey [67.8% of the patients had Crohn's disease], 49.9% were in clinical remission. The IBD-disk completion rate was 73.8%. The final analysis was conducted in this population [n = 1455 patients]. The mean IBD-disk score and IBD daily-life burden VAS were 39.0 ± 23.2 and 5.2 ± 2.9, respectively. The IBD-disk score was well correlated with the IBD daily-life burden VAS [r = 0.67; p <0.001]. At an optimal IBD-disk cut-off of 40, the area under the receiver operating characteristic curve [AUROC] for high IBD daily-life burden [VAS >5] was 0.81 (95% confidence interval [CI]: 0.79-0.83; p <0.001).
In a large cohort of patients, the IBD-disk score was well correlated with IBD daily-life burden, and it could be used in clinical practice.
炎症性肠病[IBD]-磁盘是一个包含 10 个项目的自我问卷，用于评估与 IBD 相关的残疾情况。本研究旨在评估该工具在评估 IBD 日常生活负担方面的作用。
在法国和比利时的 42 个中心进行了为期 1 周的横断面研究。患者被要求完成 IBD-disk[最佳得分为 0，最差得分为 100]和 IBD 日常生活负担的视觉模拟量表[VAS][最佳得分为 0，最差得分为 10]。分析包括内部一致性、相关性分析和诊断性能评估。
在回应调查的 2011 名 IBD 门诊患者中[67.8%的患者患有克罗恩病]，49.9%处于临床缓解期。IBD-disk 的完成率为 73.8%。最终分析在该人群中进行[n = 1455 名患者]。IBD-disk 评分的平均值和 IBD 日常生活负担 VAS 分别为 39.0 ± 23.2 和 5.2 ± 2.9。IBD-disk 评分与 IBD 日常生活负担 VAS 呈良好相关性[r = 0.67;p <0.001]。在 IBD 日常生活负担较高（VAS>5）的最佳 IBD-disk 截断值为 40 时，高 IBD 日常生活负担的受试者工作特征曲线[AUROC]下面积为 0.81（95%置信区间[CI]：0.79-0.83;p <0.001）。
在一个大样本的患者中，IBD-disk 评分与 IBD 日常生活负担密切相关，可以在临床实践中使用。
