Leeds Institute of Medical Research at St James's, University of Leeds, Leeds, UK.
Leeds Institute of Health Sciences, University of Leeds, Leeds, UK.
Colorectal Dis. 2021 Apr;23(4):975-981. doi: 10.1111/codi.15459. Epub 2020 Dec 22.
The provision of information to patients is an important part of recovery after colorectal surgery. This study aimed to define patient information needs, barriers to effective understanding and insights into how information provision may be improved.
A patient focus group was convened. This comprised a broad, convenience sample of 11 participants from across the United Kingdom with experience of major colorectal surgery. A semistructured topic guide was used to facilitate discussion about previous experiences of information provision and how this may be improved. Data were analysed thematically and are presented as major themes.
Overall, participants felt that their information needs are poorly prioritized by healthcare professionals. Barriers to understanding and retaining information include highly emotional situations (such as receiving bad news) and inappropriate information design (such as the use of inaccessible language). Participants expressed how information resources should: (a) address patients' individual information needs; (b) empower patients to take an active role in their recovery; (c) support patients with meaningful education and sign-posted resources; and (d) recognize patients' heightened need for information during recovery at home.
This study provides key insights into the information needs of patients undergoing colorectal surgery. These should inform the development of future information resources, whose format, timing and design are currently supported by low-quality evidence.
向患者提供信息是结直肠手术后康复的重要组成部分。本研究旨在确定患者的信息需求、有效理解的障碍以及如何改进信息提供的见解。
召集了一个患者焦点小组。这包括来自英国各地的 11 名具有重大结直肠手术经验的广泛便利样本的参与者。使用半结构化主题指南来促进关于以前的信息提供经验以及如何改进信息提供的讨论。对数据进行了主题分析，并以主要主题的形式呈现。
总体而言，参与者认为他们的信息需求没有得到医疗保健专业人员的优先重视。理解和保留信息的障碍包括高度情绪化的情况（例如收到坏消息）和不适当的信息设计（例如使用难以理解的语言）。参与者表达了信息资源应该如何满足患者的个人信息需求：（a）满足患者的个人信息需求；（b）赋予患者在康复过程中积极主动的角色；（c）支持患者进行有意义的教育和提供有针对性的资源；（d）认识到患者在居家康复期间对信息的强烈需求。
本研究提供了对接受结直肠手术的患者信息需求的重要见解。这些应告知未来信息资源的开发，其格式、时间安排和设计目前得到了低质量证据的支持。
