University of Exeter, College of Medicine and Health, EX1 2LU, UK.
School of Health Sciences, City, University of London, Myddelton Street Building, 1 Myddelton Street, London, EC1R 1UW, UK.
Soc Sci Med. 2021 Jan;268:113462. doi: 10.1016/j.socscimed.2020.113462. Epub 2020 Oct 19.
Social science literature has documented how the concept of diagnosis can be seen as an interactive process, imbued with uncertainty and contradiction, which undermines a straightforward notion of diagnosis as a way to identify underlying biological problems that cause disease. We contribute to this body of work by examining the process of resolving contradiction in autism diagnosis for adults and adolescents. Autism is a useful case study as diagnosis can be a complex and protracted process due to the heterogeneity of symptoms and the necessity to interpret behaviours that may be ambiguous. We audio-recorded and transcribed 18 specialist clinical assessment meetings in four teams in England, covering 88 cases in two adult, one child and one adolescent (14+) setting. We undertook a qualitative analysis of discursive processes and narrative case-building structure utilised by clinicians to counteract contradiction.We identified a three-part interactional pattern which allows clinicians to forward evidence for and against a diagnosis, facilitates their collaborative decision-making process and enables them to build a plausible narrative which accounts for the diagnostic decision. Pragmatism was found to operate as a strategy to help assign diagnosis within a condition which, diagnostically, is permeated by uncertainty and contradiction. Resolution of contradiction from different aspects of the assessment serves to create a narratively-coherent, intelligible clinical entity that is autism.
社会科学文献记录了诊断的概念如何被视为一个互动的过程,充满了不确定性和矛盾,这破坏了将诊断视为识别导致疾病的潜在生物学问题的一种方式的简单概念。我们通过检查解决成人和青少年自闭症诊断中的矛盾的过程来为这一研究领域做出贡献。自闭症是一个有用的案例研究,因为由于症状的异质性和必须解释可能模棱两可的行为,诊断可能是一个复杂和漫长的过程。我们在英格兰的四个团队中录制并转录了 18 次专家临床评估会议,涵盖了两个成人、一个儿童和一个青少年(14 岁以上)环境中的 88 个案例。我们对临床医生用来抵消矛盾的话语过程和叙事案例构建结构进行了定性分析。我们确定了一个三部分的交互模式,该模式允许临床医生提出支持和反对诊断的证据,促进他们的协作决策过程,并使他们能够构建一个合理的叙述,解释诊断决策。我们发现实用主义是一种策略,可以帮助在一个被不确定性和矛盾所渗透的诊断条件下分配诊断。从评估的不同方面解决矛盾有助于创建一个叙述上连贯、易于理解的临床实体,即自闭症。