Hopwood Nick, Moraby Khadeejah, Dadich Ann, Gowans Jessica, Pointon Keren, Ierardo Anna, Reilly Claire, Syrmis Maryanne, Frederiksen Nadine, Disher-Quill Kate, Scheuring Noémi, Heves Rudolf, Elliot Chris
School of International Studies and Education, University of Technology Sydney, Broadway, New South Wales, Australia.
Department of Curriculum Studies, University of Stellenbosch, Stellenbosch, South Africa.
J Paediatr Child Health. 2021 Feb;57(2):182-187. doi: 10.1111/jpc.15286. Epub 2020 Dec 5.
This article presents an agenda to improve the care and wellbeing of children with paediatric feeding disorder who require tube feeding (PFD-T). PFD-T requires urgent attention in practice and research. Priorities include: routine collection of PFD-T data in health-care records; addressing the tube-feeding lifecycle; and reducing the severity and duration of disruption caused by PFD-T where possible. This work should be underpinned by principles of involving, respecting and connecting families.
本文提出了一项议程,以改善需要管饲的小儿喂养障碍患儿(PFD-T)的护理和福祉。PFD-T在实践和研究中都需要得到紧急关注。优先事项包括:在医疗记录中常规收集PFD-T数据;处理管饲的整个过程;并尽可能减少PFD-T造成的干扰的严重程度和持续时间。这项工作应以让家庭参与、尊重家庭并与家庭建立联系的原则为基础。