“是那个……专家……最终倾听了我们的意见……这可能是对您所期望的奇怪回答”：临床医生和护理人员对出色的喂养护理的看法。
'it was that … specialist … that finally listened to us … that's probably a weird answer to what you were expecting': Clinician and carer perspectives on brilliant feeding care.
机构信息
School of Business, Western Sydney University, Parramatta, NSW, Australia.
Transforming early Education and Child Health (TeEACH) Strategic Research Initiative, Western Sydney University, Westmead, New South Wales, Australia.
出版信息
Health Expect. 2023 Feb;26(1):488-497. doi: 10.1111/hex.13683. Epub 2022 Dec 8.
INTRODUCTION
To extend research on positive aspects of health care, this article focusses on health care for children who tube-feed-this is because knowledge about tube-feeding for children is limited and fragmented. This is achieved by consulting with clinicians and carers who supported children who tube-feed to clarify their understandings of and experiences with brilliant feeding care.
METHODS
Nine clinicians and nine carers who supported children who tube-fed were interviewed. The interview transcripts were analysed thematically.
RESULTS
Findings highlighted several features of brilliant feeding care-namely: practices that go above and beyond; attentiveness; empowerment; being 'on the same page'; hopefulness and normalcy.
CONCLUSIONS
These findings show that seemingly trivial or small acts of care can make a significant meaningful difference to carers of children who tube-feed. Such accounts elucidate brilliant care as grounded in feasible, everyday actions, within clinicians' reach. The implications associated with these findings are threefold. First, the findings highlight the need for clinicians to listen, be attuned and committed to the well-being of children who tube-feed and their carers, share decision-making, source resources, and instil hope. Second, the findings suggest that carers should seek out and acknowledge clinicians who listen, involve them in decision-making processes, and continue to source the resources required to optimize child and carer well-being. Third, the findings point to the need for research to clarify the models of care that foster brilliant feeding care, and the conditions required to introduce and sustain these models.
PATIENT OR PUBLIC CONTRIBUTION
All of the carers and clinicians who contributed to this study were invited to participate in a workshop to discuss, critique, and sense-check the findings. Three carers and one clinician accepted this invitation. Collectively, they indicated that the findings resonated with them, and they agreed with the themes, which they indicated were well-substantiated by the data.
简介
为了扩展医疗保健积极方面的研究，本文聚焦于为需要管饲喂养的儿童提供医疗保健，这是因为有关儿童管饲喂养的知识有限且零散。通过与支持管饲喂养儿童的临床医生和护理人员进行咨询，以澄清他们对卓越喂养护理的理解和经验，从而实现这一目标。
方法
对 9 名临床医生和 9 名支持管饲喂养儿童的护理人员进行了访谈。对访谈记录进行了主题分析。
结果
研究结果强调了卓越喂养护理的几个特征，即：超越常规的做法；关注；赋权；“志同道合”；充满希望和正常化。
结论
这些发现表明，看似微不足道或微小的护理行为，可能会对管饲喂养儿童的护理人员产生重大而有意义的影响。这些描述阐明了卓越护理是基于可行的、日常的行动，临床医生能够做到。这些发现有三个方面的影响。首先，研究结果强调了临床医生倾听、关注和致力于儿童和其护理人员的福祉、共享决策、寻找资源并灌输希望的必要性。其次，研究结果表明，护理人员应该寻找并认可倾听的临床医生，让他们参与决策过程，并继续寻找所需的资源，以优化儿童和护理人员的福祉。第三，研究结果表明，需要进行研究以阐明促进卓越喂养护理的护理模式，以及引入和维持这些模式所需的条件。
患者或公众贡献
所有参与这项研究的护理人员和临床医生都被邀请参加一个研讨会，讨论、批评和检验研究结果。有 3 名护理人员和 1 名临床医生接受了邀请。他们共同表示，研究结果与他们产生了共鸣，他们同意这些主题，这些主题得到了数据的充分证实。
Zotero 插件