Scheuring Noémi, Gervai Judit, Gulácsi Ágnes, Danis Ildikó, Hopwood Nick, Elliot Christopher, Sebestyén Kitti, Szabó László
Early Childhood Eating and Sleeping Disorders Clinic, Heim Pál National Pediatric Institute, Budapest, Hungary.
Institute of Cognitive Neuroscience and Psychology, HUN-REN Research Centre for Natural Sciences, Budapest, Hungary.
Med Sci Monit. 2025 Aug 20;31:e946720. doi: 10.12659/MSM.946720.
BACKGROUND Children with feeding disorders may require tube feeding when oral intake is insufficient. This study compared the clinical management and parental experiences of tube-fed children versus orally-fed children with feeding disorders. MATERIAL AND METHODS A retrospective cohort study was conducted on 22 children under 3 years old diagnosed with feeding disorders, treated at the Early Childhood Eating and Sleeping Disorders Clinic, between July 2018 and December 2020. Eleven tube-fed children were matched with 11 orally-fed children based on age and sex. Data were collected from medical records, parental questionnaires, and clinical documentation. Parental mood, stress levels, and perceived social support were assessed via validated self-report measures. RESULTS Significantly different aspects of coping were found in the parental group of tube-fed children. The need for occupational therapy and psychological consultation only occurred in the tube-fed group. The tube-fed group had more visits at the clinic. These parents were less satisfied with their child's development and generally felt less successful in coping with the difficulties. They felt they had been less supported by their social environment than parents in the control group. CONCLUSIONS The management of tube-fed children primarily focuses on the child. However, these cases are more efficiently managed with multidisciplinary teamwork and with the active involvement of parents.
背景 当经口摄入量不足时,患有喂养障碍的儿童可能需要管饲。本研究比较了管饲儿童与经口喂养的喂养障碍儿童的临床管理及家长的经历。
材料与方法 对2018年7月至2020年12月期间在幼儿饮食与睡眠障碍诊所接受治疗的22名3岁以下诊断为喂养障碍的儿童进行了一项回顾性队列研究。根据年龄和性别,将11名管饲儿童与11名经口喂养儿童进行匹配。数据从医疗记录、家长问卷和临床文档中收集。通过有效的自我报告测量方法评估家长的情绪、压力水平和感知到的社会支持。
结果 在管饲儿童的家长组中发现了应对方式上的显著差异。仅在管饲组中出现了职业治疗和心理咨询的需求。管饲组在诊所的就诊次数更多。这些家长对孩子的发育不太满意,总体上觉得在应对困难方面不太成功。他们觉得自己得到的社会环境支持比对照组的家长少。
结论 管饲儿童的管理主要关注儿童。然而,通过多学科团队合作以及家长的积极参与,这些病例能得到更有效的管理。