Fliedner Fachhochschule Düsseldorf, University of Applied Sciences, Düsseldorf, Germany.
Hochschule Düsseldorf, Düsseldorf, Germany.
J Alzheimers Dis. 2021;79(1):355-375. doi: 10.3233/JAD-201110.
Current research acknowledges the relevance of the emotional safety of people living with dementia. However, available evidence regarding this topic is limited. A comprehensive view of this topic that equally considers the perspectives of people living in an early stage of dementia, relatives, and public stakeholders is lacking.
This study aimed to obtain a multiperspective view of emotional safety in the context of dementia in the living environment.
A descriptive qualitative study was conducted based on data collected through semi-structured guided interviews (n = 14), focus groups (n = 3), guided feedback, and participatory approaches. People living in an early stage of dementia (N = 6), relatives of people living with dementia (N = 11), and public stakeholders (N = 15) were included.
Considering "social togetherness", "personal condition", "health", "physical environment", and "society" in the light of "living and learning in relations" are preconditions for understanding emotional safety in the context of dementia. "Living and learning in relations" refers to the interaction of people in the context of dementia and relations to the topic of dementia. The focus lies on the (collective) learning. The individuality of each person and his or her situation is central, related to dementia-related, psychosocial, biographical, physical, and economic factors.
Our study highlights the relevance of research on emotional safety in the context of dementia. Approaches to improving the emotional safety of people living in an early stage of dementia should consider the complex situations of each target group in relation to each other at the micro, meso, and macro levels.
目前的研究承认痴呆症患者的情感安全的相关性。然而，关于这个主题的可用证据是有限的。缺乏对这一主题的全面看法，即平等考虑处于痴呆症早期阶段的人、亲属和公众利益相关者的观点。
本研究旨在从居住环境中痴呆症的角度获得对情感安全的多角度看法。
根据通过半结构化引导访谈（n=14）、焦点小组（n=3）、引导反馈和参与式方法收集的数据，进行描述性定性研究。包括处于痴呆症早期阶段的人（n=6）、痴呆症患者的亲属（n=11）和公众利益相关者（n=15）。
考虑到“社会团聚”、“个人状况”、“健康”、“物理环境”和“社会”，根据“在关系中生活和学习”，是理解痴呆症背景下情感安全的前提条件。“在关系中生活和学习”是指在痴呆症背景下和与痴呆症相关的主题中人们的互动。重点在于（集体）学习。每个人的个性及其状况是核心，与痴呆症相关的、心理社会的、传记的、身体的和经济的因素有关。
我们的研究强调了痴呆症背景下情感安全研究的相关性。改善处于早期痴呆症阶段的人的情感安全的方法应考虑到每个目标群体在微观、中观和宏观层面相互之间的复杂情况。
