Finlay Juli, Wilson Todd, Javaheri Pantea Amin, Pearson Winnie, Connolly Carol, Elliott Meghan J, Graham Michelle M, Norris Colleen M, Wilton Stephen B, James Matthew T
Departments of Medicine (Finlay, Javaheri, Pearson, Elliott, James), Community Health Sciences (Wilson, Wilton, James) and Cardiac Sciences (Connolly, Wilton), Cumming School of Medicine, University of Calgary, Calgary, Alta.; Department of Medicine (Graham), Faculty of Medicine & Dentistry, and Faculty of Nursing (Norris), University of Alberta, Edmonton, Alta.
CMAJ Open. 2020 Dec 10;8(4):E860-E868. doi: 10.9778/cmajo.20200039. Print 2020 Oct-Dec.
Patients with chronic kidney disease (CKD) and heart disease face challenging treatment decisions. We sought to explore the perceptions of patients and physicians about shared decision-making for coronary procedures for people with CKD, as well as opinions about strategies and tools to improve these decisions.
We partnered with 4 patients with CKD and 1 caregiver to design and conduct a qualitative descriptive study using semi-structured interviews and content analysis. Patient participants with CKD and either acute coronary syndrome or cardiac catheterization in the preceding year were recruited from a provincial cardiac registry, cardiology wards and clinics in Calgary between March and September 2018. Cardiologists from the region also participated in the study. Data analysis emphasized identifying, organizing and describing themes found within the data.
Twenty patients with CKD and 10 cardiologists identified several complexities related to bidirectional information exchange needed for shared decision-making. Themes identified by both patients and physicians included challenges synthesizing best evidence, variable patient knowledge seeking, timeliness in the acute care setting and influence of roles on decision-making. Themes identified by physicians related to processes and tools to help support shared decision-making in this setting included personalization to reflect the variability of risks and heterogeneity of patient preferences as well as allowing for physicians to share their clinical judgment.
There are complexities related to bidirectional information exchange between patients with CKD and their physicians for shared decision-making about coronary procedures. Processes and tools to facilitate shared decision-making in this setting require personalization and need to be time sensitive.
慢性肾脏病(CKD)患者和心脏病患者面临具有挑战性的治疗决策。我们试图探讨患者和医生对CKD患者冠状动脉手术共同决策的看法,以及对改善这些决策的策略和工具的意见。
我们与4名CKD患者和1名护理人员合作,采用半结构化访谈和内容分析设计并开展了一项定性描述性研究。2018年3月至9月期间,从省级心脏登记处、卡尔加里的心脏病病房和诊所招募了前一年患有CKD且患有急性冠状动脉综合征或接受过心脏导管插入术的患者参与者。该地区的心脏病专家也参与了这项研究。数据分析着重于识别、组织和描述数据中发现的主题。
20名CKD患者和10名心脏病专家确定了共同决策所需的双向信息交流的几个复杂性。患者和医生都确定的主题包括综合最佳证据的挑战、患者寻求知识的差异、急性护理环境中的及时性以及角色对决策的影响。医生确定的与帮助支持这种情况下共同决策的流程和工具相关的主题包括个性化以反映风险的变异性和患者偏好的异质性,以及允许医生分享他们的临床判断。
CKD患者与其医生之间就冠状动脉手术的共同决策进行双向信息交流存在复杂性。在这种情况下促进共同决策的流程和工具需要个性化且对时间敏感。