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心怀怨恨:临终关怀家庭照护者人际伤害的普遍性和对宽恕导向解决方案的需求。

Holding onto Hurt: The Prevalence of Interpersonal Hurt and Need for Forgiveness-Focused Solutions for Hospice Family Caregivers.

机构信息

Research Department, Hospice and Palliative Care Buffalo, Cheektowaga, New York, USA.

Department of Planning and Research, Trocaire College, Buffalo, New York, USA.

出版信息

J Palliat Med. 2021 Aug;24(8):1139-1146. doi: 10.1089/jpm.2020.0521. Epub 2020 Dec 10.

Abstract

Interpersonal hurt or offenses are common human experiences. Bereavement may be impacted for caregivers of a terminally ill loved one when these experiences occur. To determine the prevalence and impact of interpersonal hurt-based experiences for hospice caregivers and interest in forgiveness-based support. Cross-sectional, mixed methods needs assessment. Bereaved hospice caregivers ( = 162) and direct care hospice clinicians ( = 133) were surveyed through mail-in and online surveys. Participants completed surveys to assess prevalence and impact of interpersonal hurt experiences and interest in forgiveness-based support. Bereaved caregivers also completed the Core Bereavement Items (CBI). 41.98% of the bereaved experienced an interpersonal hurt or offense during the care or passing of their loved one. Those with hurt experiences felt highly impacted (63.2%), "sometimes" or "often" revisited the experience (91.2%), felt that their bereavement was affected (61.5%), and experienced physical symptoms (46.3%). CBI scores positively correlated with the impact of the experience. Hurt caregivers had higher CBI scores compared with those who did not. Of those who had not forgiven the offender, 46.3% felt that they could benefit from forgiveness-based support services. Qualitative analysis revealed themes of Disagreements with Decisions, Lack of Support, Relational Interactions, and Impact on Bereavement. Clinician responses supported these results. Interpersonal hurt experiences can greatly impact the offended caregiver during caregiving and in bereavement. However, it should be noted that the decision to forgive is ultimately a personal choice and therefore forgiveness-based for forgiveness-specific interventions may not be appropriate for all individuals. Future research should assess the feasibility and usefulness of this type of support for caregivers and the bereaved.

摘要

人际伤害或冒犯是常见的人类经历。当这些经历发生时,绝症患者照顾者的丧亲之痛可能会受到影响。为了确定临终关怀照顾者基于人际伤害的经历的普遍性和影响,以及他们对基于宽恕的支持的兴趣。横断面、混合方法需求评估。通过邮件和在线调查对 162 名丧亲的临终关怀照顾者和 133 名直接护理临终关怀临床医生进行了调查。参与者完成了调查,以评估人际伤害经历的普遍性和影响,以及对基于宽恕的支持的兴趣。丧亲的照顾者还完成了核心丧亲项目 (CBI)。41.98%的丧亲者在照顾或亲人去世期间经历了人际伤害或冒犯。有伤害经历的人感到受到了极大的影响(63.2%),“有时”或“经常”重温这种经历(91.2%),感到自己的丧亲之痛受到了影响(61.5%),并出现了身体症状(46.3%)。CBI 得分与经历的影响呈正相关。与没有经历过伤害的照顾者相比,有伤害经历的照顾者的 CBI 得分更高。在没有原谅冒犯者的人中,有 46.3%的人认为他们可以从基于宽恕的支持服务中受益。定性分析揭示了决策分歧、缺乏支持、关系互动和对丧亲之痛的影响等主题。临床医生的反应支持了这些结果。人际伤害经历可能会在照顾期间和丧亲期间对受到伤害的照顾者产生重大影响。然而,需要注意的是,原谅的决定最终是个人的选择,因此基于宽恕的宽恕特定干预措施可能并不适合所有个体。未来的研究应该评估这种类型的支持对照顾者和丧亲者的可行性和有用性。

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