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青少年囊性纤维化患者身体健康与应对方式之间的相互关系。

Reciprocal Links Between Physical Health and Coping Among Adolescents With Cystic Fibrosis.

机构信息

Department of Psychology, University of Alabama at Birmingham.

Akron Children's Hospital.

出版信息

J Pediatr Psychol. 2021 Feb 19;46(2):231-240. doi: 10.1093/jpepsy/jsaa103.

Abstract

OBJECTIVE

Adolescents with cystic fibrosis (CF) often face a unique set of difficulties and challenges as they transition to adulthood and autonomy while also managing a progressive illness with a heavy treatment burden. Coping styles have been related to changes in physical health among youth with chronic illness more generally, but the directionality of these links has not been fully elucidated. Therefore, the objective of this study was to evaluate bidirectional links between coping styles and physical health indicators among adolescents with CF over time.

METHODS

Adolescents (N = 79, 54% female) recruited from inpatient and outpatient CF clinics at two sites completed questionnaires assessing secular and religious/spiritual coping styles at two time points (18 months apart, on average). Health indicators including pulmonary functioning, nutritional status, and days hospitalized were obtained from medical records.

RESULTS

More frequent hospitalizations predicted lower levels of adaptive secular coping over time. However, poorer pulmonary functioning predicted higher levels of positive religious/spiritual coping. The number of days hospitalized was related to adaptive secular coping and negative religious/spiritual coping.

CONCLUSIONS

Among youth with CF, physical health functioning is more consistent in predicting coping strategies than the reverse. Poorer pulmonary functioning appears to enhance adaptive coping over time, suggesting resilience of adolescents with CF, while more frequent hospitalizations may inhibit the use of adaptive coping strategies. Findings support the use of interventions aimed at promoting healthy coping among hospitalized adolescents with CF.

摘要

目的

患有囊性纤维化(CF)的青少年在向成年和自主过渡时,经常面临一系列独特的困难和挑战,同时还要应对负担沉重的渐进性疾病。应对方式与一般来说,患有慢性疾病的年轻人的身体健康变化有关,但这些联系的方向性尚未完全阐明。因此,本研究的目的是评估 CF 青少年的应对方式与身体健康指标之间的双向联系。

方法

从两个地点的住院和门诊 CF 诊所招募了 79 名青少年(54%为女性),他们在两个时间点(平均间隔 18 个月)完成了评估世俗和宗教/精神应对方式的问卷。健康指标包括肺功能、营养状况和住院天数,从病历中获得。

结果

更频繁的住院预测了随着时间的推移,适应性世俗应对水平的降低。然而,较差的肺功能预测了更高水平的积极宗教/精神应对。住院天数与适应性世俗应对和消极宗教/精神应对有关。

结论

在 CF 青少年中,身体健康功能比相反情况更能预测应对策略。随着时间的推移,较差的肺功能似乎增强了适应性应对,表明 CF 青少年具有韧性,而更频繁的住院可能会抑制适应性应对策略的使用。研究结果支持使用旨在促进 CF 住院青少年健康应对的干预措施。

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Coping with chronic illness in childhood and adolescence.应对儿童和青少年时期的慢性疾病。
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The development of coping.应对方式的发展
Annu Rev Psychol. 2007;58:119-44. doi: 10.1146/annurev.psych.58.110405.085705.

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