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将中风的后果融入日常生活 - 从长远角度的经验。

Integrating consequences of stroke into everyday life - Experiences from a long-term perspective.

机构信息

Department of Health and Rehabilitation, Institute of Neuroscience and Physiology, The Sahlgrenska Academy at Gothenburg University, Gothenburg, Sweden.

Department of Occupational therapy and Department of Research, Education and Innovation, Södra Älvsborg Hospital, Region Västra Götaland, Borås, Sweden.

出版信息

Scand J Occup Ther. 2022 Feb;29(2):126-138. doi: 10.1080/11038128.2020.1857433. Epub 2020 Dec 12.

DOI:10.1080/11038128.2020.1857433
PMID:33307938
Abstract

BACKGROUND

Occupational engagement encompasses both objective and subjective aspects of occupation. Long-term follow-up studies indicate that stroke can have a negative impact on the ability to perform IADL. Less is known about the subjective experiences of occupational engagement and how engagement may evolve after stroke.

OBJECTIVE

To explore stroke survivors' experiences of occupational engagement and how engagement changed over time and across contexts.

MATERIAL AND METHODS

Repeat, semi-structured interviews 15-18 years post-stroke, analysed using thematic analysis. Eight out of nine participants were classified as having had a mild stroke at onset.

RESULTS

The analysis resulted in five themes that together formed the main theme 'It takes time - integrating consequences of stroke into everyday life by engaging in occupation, using internal resources and adapting to context'. This illustrated how occupational outcome was the result of a continuous process in which occupational engagement was a way of gradually integrating consequences of stroke into everyday life.

CONCLUSION AND SIGNIFICANCE

Occupational engagement plays an important part in the process of moving on with life and can serve as both goal and means of achieving desired outcomes after stroke. Interventions that focus on enabling opportunities for occupational engagement in valued occupations and support the use of abilities and internal resources can reduce the impact of stroke in everyday life.

摘要

背景

职业参与包括职业的客观和主观方面。长期随访研究表明,中风会对进行日常生活活动能力(IADL)的能力产生负面影响。对于职业参与的主观体验以及参与度如何在中风后演变,人们知之甚少。

目的

探讨中风幸存者的职业参与体验,以及参与度如何随时间和环境变化而变化。

材料和方法

对 9 名参与者中的 8 名(发病时被归类为轻度中风)进行了中风后 15-18 年的重复、半结构化访谈,并使用主题分析进行分析。

结果

分析产生了五个主题,这些主题共同构成了主要主题“需要时间——通过从事职业、利用内部资源和适应环境,将中风的后果融入日常生活”。这说明了职业结果是一个持续的过程的结果,在这个过程中,职业参与是逐渐将中风后果融入日常生活的一种方式。

结论和意义

职业参与在继续生活的过程中起着重要作用,它可以作为中风后实现期望结果的目标和手段。关注在有价值的职业中为职业参与创造机会并支持能力和内部资源利用的干预措施,可以减少中风对日常生活的影响。

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