University of Iowa, Iowa City, Iowa.
Emory University, Atlanta, Georgia.
J Am Acad Dermatol. 2021 Apr;84(4):1037-1041. doi: 10.1016/j.jaad.2020.11.068. Epub 2020 Dec 13.
The American Academy of Dermatology launched DataDerm in 2016 as the clinical data registry platform of the American Academy of Dermatology. DataDerm is approved by the Centers for Medicare & Medicaid Services as a Qualified Clinical Data Registry for the Merit-Based Incentive Payment System. The ultimate purpose of DataDerm is to provide dermatologists with a registry and database that will serve as a vehicle to advance the specialty in the domains of science, discovery, education, quality assessment, quality improvement, advocacy, and practice management. DataDerm is currently the largest clinical registry and database of patients receiving dermatologic care in the world. As of December 31, 2019, DataDerm contained data from 10,618,879 unique patients and 32,309,389 unique patient visits. Depending on the reporting period, 800 to 900 practices (representing 2400-2600 clinicians) actively participate in DataDerm by submitting data. This article provides the first of a planned series of annual updates of the status of DataDerm. The purpose of this article is to present the rationale for the creation, maintenance, history, and current status of DataDerm, as well as the future plans for DataDerm.
美国皮肤病学会于 2016 年推出了 DataDerm,作为美国皮肤病学会的临床数据注册平台。DataDerm 获得了医疗保险和医疗补助服务中心的批准,作为基于绩效的奖励支付系统的合格临床数据注册中心。DataDerm 的最终目的是为皮肤科医生提供一个注册和数据库,作为在科学、发现、教育、质量评估、质量改进、宣传和实践管理领域推进专业发展的工具。DataDerm 目前是世界上最大的皮肤科患者临床注册和数据库。截至 2019 年 12 月 31 日,DataDerm 包含了来自 10618879 位独特患者和 32309389 位独特患者就诊的数据。根据报告期的不同,有 800 到 900 家实践(代表 2400 到 2600 名临床医生)通过提交数据积极参与 DataDerm。本文提供了计划中的 DataDerm 年度更新系列的第一篇,旨在介绍 DataDerm 创建、维护、历史和现状的基本原理,以及 DataDerm 的未来计划。