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关于实现全民健康覆盖的数据治理原则的持续辩论:二十国集团大阪峰会后的建议。

Ongoing debate on data governance principles for achieving Universal Health Coverage: a proposal to post-G20 Osaka Summit meetings.

机构信息

Department of Health Policy and Management, School of Medicine, Keio University , Tokyo, Japan.

Department of Global Health Policy, Graduate School of Medicine, The University of Tokyo , Tokyo, Japan.

出版信息

Glob Health Action. 2020 Dec 31;13(1):1859822. doi: 10.1080/16549716.2020.1859822.

DOI:10.1080/16549716.2020.1859822
PMID:33334272
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7751421/
Abstract

The Group of 20 Summit (G20) in Osaka, which Japan chaired for the first time in June 2019 has created a tailwind for achieving universal health coverage (UHC) globally. In response to the rapid digitalization, the G20 leaders commenced negotiations for the Osaka Track framework to formulate international rules on data flow across borders and systematize the concept of 'Data Free Flow with Trust (DFFT).' The strategic harnessing of the power of data to strengthen the healthcare system can allow for rapid and affordable progress toward achieving UHC. However, world leaders have yet to discuss what data governance approaches the Osaka Track will follow, or even on what values it will seek to create and maximize. In this paper, we propose a people-centered, trust-oriented approach as the key principle of data governance toward achieving UHC, using Japan's experience as an example. We believe that this approach is compatible with other prevailing approaches (e.g. the General Data Protection Regulation (GDPR) in the European Union), and can serve as a bridge to their conceptual differences. We hope that our proposed principles will be fully discussed in post-G20 Osaka Summit meetings.

摘要

2019 年 6 月,日本首次担任主席国的二十国集团(G20)大阪峰会为全球实现全民健康覆盖(UHC)创造了有利条件。为应对快速数字化,G20 领导人启动了大阪轨道框架谈判,以制定跨境数据流的国际规则,并将“可信数据自由流动(DFFT)”概念系统化。战略性地利用数据力量来加强医疗保健系统,可以实现快速和负担得起的全民健康覆盖目标。然而,世界领导人尚未讨论大阪轨道将遵循哪些数据治理方法,甚至尚未讨论它将寻求创造和最大化哪些价值观。在本文中,我们提出了一种以人为本、以信任为导向的方法,作为实现 UHC 的数据治理的关键原则,并以日本的经验为例。我们相信,这种方法与其他流行的方法(例如欧盟的《通用数据保护条例(GDPR)》)兼容,并可以作为它们概念差异的桥梁。我们希望在 G20 大阪峰会后举行的会议上充分讨论我们提出的原则。

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