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本文引用的文献

1
Disability and sexuality: claiming sexual and reproductive rights.残疾与性取向:争取性与生殖权利
Reprod Health Matters. 2017 May;25(50):4-9. doi: 10.1080/09688080.2017.1336375.
2
Urgently awaiting implementation: The right to be free from exploitation, violence and abuse in Article 16 of the Convention on the Rights of Persons with Disabilities (CRPD).亟待落实:《残疾人权利公约》(CRPD)第十六条规定的免受剥削、暴力和虐待的权利。
Int J Law Psychiatry. 2017 Jul-Aug;53:2-14. doi: 10.1016/j.ijlp.2017.05.007. Epub 2017 Jun 20.
3
Field-testing of the rapid assessment of disability questionnaire.残疾问卷快速评估的现场测试。
BMC Public Health. 2014 Sep 1;14:900. doi: 10.1186/1471-2458-14-900.
4
Sexuality, disability and human rights: strengthening healthcare for disabled people.性取向、残疾与人权:加强残疾人医疗保健服务
S Afr Med J. 2012 Jul 31;102(10):792-3. doi: 10.7196/samj.6052.
5
Prevalence and risk of violence against adults with disabilities: a systematic review and meta-analysis of observational studies.残疾成年人遭受暴力的流行率和风险:观察性研究的系统回顾和荟萃分析。
Lancet. 2012 Apr 28;379(9826):1621-9. doi: 10.1016/S0140-6736(11)61851-5. Epub 2012 Feb 28.
6
Access to health care, reproductive health and disability: a large scale survey in Sierra Leone.获取医疗保健、生殖健康和残疾服务的机会:塞拉利昂的一项大规模调查。
Soc Sci Med. 2011 Nov;73(10):1477-89. doi: 10.1016/j.socscimed.2011.08.040. Epub 2011 Sep 29.
7
Universal design of research: inclusion of persons with disabilities in mainstream biomedical studies.研究的通用设计:将残疾人士纳入主流生物医学研究中。
Sci Transl Med. 2011 May 11;3(82):82cm12. doi: 10.1126/scitranslmed.3002133.

记录在中低收入国家环境下开展残疾人性与生殖健康和权利(SRHR)研究的挑战:来自孟加拉国的经验教训。

Documenting the challenges of conducting research on sexual and reproductive health and rights (SRHR) of persons with disabilities in a low-and-middle income country setting: lessons from Bangladesh.

机构信息

BRAC James P Grant School of Public Health, BRAC University, Dhaka, Bangladesh

BRAC James P Grant School of Public Health, BRAC University, Dhaka, Bangladesh.

出版信息

BMJ Glob Health. 2020 Dec;5(12). doi: 10.1136/bmjgh-2020-002904.

DOI:10.1136/bmjgh-2020-002904
PMID:33334901
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7747532/
Abstract

Research has shown that persons with disabilities require greater sexual and reproductive health (SRH) care and services than persons without disabilities. However, this need is often neglected in most of the low-and-middle-income countries including Bangladesh. There is also a dearth of research and data relevant to this issue. A nationwide mixed-methods research has been conducted to explore persons with disabilities' specific sexual and reproductive health and rights (SRHR) needs, health seeking behaviour related to SRH and barriers in accessing SRH services, along with the associated factors that influence their SRH outcomes. The purpose of this paper is to discuss the challenges encountered by the researchers while conducting this research and the strategies adopted to resolve those challenges. Some of the challenges experienced by the researchers include development of appropriate tools with questions on sensitive SRHR topics, obtaining informed consent, difficulty to maintain privacy while exploring sensitive SRHR issues and communication difficulties when interviewing individuals with intellectual and sensory impairments. The mitigation strategies include iterative revisions of all tools based on multiple pretests in different filed sites and expert feedback, strategic rapport building and maintaining appropriate contextual etiquette while conducting the interviews. The reflections discussed in this paper will assist future researchers in understanding potential field challenges they might encounter in similar low resource settings while conducting research on SRHR and similar sensitive issues among marginalised population groups, such as persons with disabilities.

摘要

研究表明,与非残疾者相比,残疾者需要更多的性健康和生殖健康(SRH)护理和服务。然而,在包括孟加拉国在内的大多数中低收入国家,这种需求往往被忽视。与这一问题相关的研究和数据也很少。为了探索残疾者特定的性健康和生殖健康及权利(SRHR)需求、与性健康相关的求医行为以及获取性健康服务的障碍,以及影响他们性健康结果的相关因素,进行了一项全国性的混合方法研究。本文的目的是讨论研究人员在进行这项研究时遇到的挑战,以及为解决这些挑战而采取的策略。研究人员遇到的一些挑战包括制定关于敏感的 SRHR 话题的适当工具,获得知情同意,在探索敏感的 SRHR 问题时难以保护隐私,以及在采访智力和感官障碍者时的沟通困难。缓解策略包括根据不同现场的多次预测试和专家反馈,对所有工具进行迭代修订,在进行访谈时建立战略关系并保持适当的背景礼仪。本文所讨论的反思将有助于未来的研究人员了解他们在类似的资源匮乏环境中进行性健康和生殖健康以及类似的边缘化人群(如残疾者)的敏感问题研究时可能遇到的潜在现场挑战。